PROBE Australia Study

Have you done the PROBE survey yet?

The 2023 round of the PROBE Australia Study has now commenced!

PROBE - Patient Reported Outcomes Burdens and Experiences Study

You can contribute to our evidence on the different experiences of living with haemophilia.

What is the impact of haemophilia on Australians? 
What has changed since new treatments became available?
How does haemophilia impact on different people over their lifetime? For example, women, people with mild haemophilia or inhibitors, younger people, getting older with haemophilia.

We use statistics from Australian survey responses in our advocacy and planning for the future. 

Please complete the survey by Wednesday 31 January 2024.


WHO CAN DO THE SURVEY

You are invited to complete the questionnaire if you are an adult (18 years+) who lives in Australia and:

have haemophilia or carry the gene
OR
do NOT have a bleeding disorder.


HOW TO DO THE SURVEY

PROBE QR code

The questionnaire is available:

  • Web version at myprobe.org
  • Or download the myPROBE app from Apple Store or Google Play (Android)
  • Or ask your local Foundation or HFA for a print survey pack

MORE INFORMATION

For more information about the PROBE Australia study, visit
www.haemophilia.org.au/probe-study 

Or contact Suzanne at HFA:
E: socallaghan@haemophilia.org.au
T: 1800 807 173

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