Items tagged 'Treatment & care'

Do you have a bleeding disorder

Kara Cordiner -
26 March 2025

The ISTH International Bleeding Assessment Tool (ISTH-BAT) is a standardized scoring system to evaluate if you may have a bleeding disorder.

Gene and emerging therapies in haemophilia

Ashley Fletcher -
26 March 2025

Exciting advancements in gene therapy and other emerging treatments for haemophilia were presented at the Blood 2024 conference.

Haemophilia Treatment Preferences Survey

CaPPRe -
26 March 2025

(HaemPref Survey) How do individuals make decisions about treatment? What factors encourage or discourage patients from treatments? What are individuals’…

Travelling overseas with haemophilia

Claire -
11 December 2024

Claire describes international travel with her sons with severe haemophilia: treatments, packing, luggage and planning.

Endoscopies – what might I need to know?

Sue Webzell -
11 December 2024

Special considerations with endoscopy, gastroscopy or colonoscopy for people with haemophilia, VWD and other bleeding disorders.

Why stay in contact with your HTC?

11 December 2024

How your Haemophilia Treatment Centre can support you over your lifetime and ensure your wellbeing and best outcomes from treatment and care.

From the President

Gavin Finkelstein -
11 December 2024

As we wrap up 2024, HFA reflects on our achievements in new therapies, hep C advocacy and support during the year.

Jack’s latest travel adventure

17 October 2024

Boys, Personal stories, Travel, Treatment & care, Young people
adventure sport, haemophilia, travel, treatment, Youth

Jack shares his travel adventures in Canada and the USA - snowboarding and managing haemophilia on the road with new treatments.

Haemophilia gene therapy snapshot survey

Suzanne O'Callaghan -
11 September 2024

HFA's haemophilia gene therapy snapshot survey asked people and parents of children with haemophilia what outcomes they would like from treatment now and in the future.

From the President

Gavin Finkelstein -
11 September 2024

Heading to the end of the year, we review our progress. Gene and emerging therapies are on the agenda, and Bleeding Disorders Awareness Month is coming up.

Haemophilia Foundation Australia

Created with Heartburst

Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.

Items tagged 'Treatment & care'

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