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Items tagged 'Treatment & care'

  • National Haemophilia Journal

AHCDO update

  • Andrea Johannessen -
  • 19 March 2024
The Australian Haemophilia Centre Directors' Organisation (AHCDO) has a new committee and had a successful education day discussing women, VWD and gene therapy.
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  • National Haemophilia Journal

FIFO and bleeding disorders

  • Beryl Zeissink -
  • 19 March 2024
As a FIFO, what do you need to think about to manage your bleeding disorder when you are onsite?
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  • National Haemophilia Journal

Pain

  • Emma Wells -
  • 11 December 2023

EMMA WELLS Emma Wells is Paediatric Social Worker – Haematology, John Hunter Children’s Hospital, Newcastle NSW PainChair ~ Jonathan SpencerBetter…

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  • National Haemophilia Journal

Mild haemophilia

  • Suzanne O'Callaghan and Natalie Karlovic -
  • 11 December 2023

Plenary – Managing mild haemophilia Chair ~ Dr Heather TappPersonal perspective from a young adult and his dad ~ Louis and…

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  • National Haemophilia Journal

Von Willebrand disease

  • Suzanne O'Callaghan -
  • 11 December 2023

SUZANNE O’CALLAGHAN Suzanne O’Callaghan is HFA Policy Research and Education Manager VWDChair ~ Dr Chee Wee TanPersonal story ~Adam Personal story…

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  • National Haemophilia Journal

New haemophilia therapies

  • Alex Klever and Natalie Karlovic -
  • 11 December 2023

ALEX KLEVER Alex Klever is Clinical Nurse Consultant – Haemophilia at the Queensland Haemophilia Centre, Royal Brisbane & Women’s Hospital…

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  • National Haemophilia Journal

Hopes for the future

  • Claire -
  • 11 December 2023
Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.
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  • National Haemophilia Journal

New haemophilia booklet

  • 11 December 2023

The new HFA Haemophilia booklet is now available. The 2023 edition has been revised completely to take new haemophilia treatments…

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  • National Haemophilia Journal

Emicizumab in haemophilia A

  • Radha Ramanan -
  • 12 September 2023

RADHA RAMANAN Dr Radha Ramanan is the current Australian Haemophilia Centre Directors’ Organisation (AHCDO) Research Fellow.  Dr Radha Ramanan reports…

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  • National Haemophilia Journal

Mouth bleeds in bleeding disorders

  • Grainne Dunne -
  • 12 September 2023

GRAINNE DUNNE Grainne Dunne is Clinical Nurse Consultant, Haemophilia, at Sydney Children’s Hospital Our mouth is a most wonderful and…

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Haemophilia Foundation Australia

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