Items tagged 'Treatment & care'

HFA's haemophilia gene therapy snapshot survey asked people and parents of children with haemophilia what outcomes they would like from treatment now and in the future.
Heading to the end of the year, we review our progress. Gene and emerging therapies are on the agenda, and Bleeding Disorders Awareness Month is coming up.
Exciting new haemophilia treatments using a range of innovative technologies were highlighted at ISTH 2024 Congress.
With new haemophilia treatments, recording on MyABDR has some challenges. HTCs and users share their tips.
The EAHAD Congress was a stimulating forum to discuss new issues in haemophilia nursing - eg, bleeds with new therapies, women and mild haemophilia.
With the new treatments I am seeing people with bleeding disorders in the haemophilia clinic and on the hospital ward who are having a different presentation of bleeding to what we had traditionally seen.
Sessions on women and girls at the WFH 2024 World Congress had a strong message that it’s time for action on female-specific research, treatment and care.
One of the most memorable sessions at WFH 2024 World Congress focused on the optimal dosage of prophylaxis treatment for individuals with haemophilia
At the Nurses’ Workshop at WFH 2024 World Congress, Scott gave a fascinating presentation about the patient experience of body art with severe haemophilia .
The Professional Development Day at WFH 2024 World Congress was an ultrasound workshop, teaching how to detect the presence or absence of a bleed.

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