Can you help with PROBE?

Are you a family member, friend or supporter of someone with haemophilia?

If you don’t have a bleeding disorder, you can also participate in the PROBE Australia Study.

PROBE - Patient Reported Outcomes Burdens and Experiences Study

We need 200 people WITHOUT a bleeding disorder to be a comparison group.
So far we only have 90!

HFA’s high quality internationally-recognised PROBE Australia Study measures the impact of haemophilia. This is crucial data to understand our community’s needs and for advocacy and promotion of further research.

HOW CAN YOU HELP?

Please consider completing the current 2023-2024 PROBE Australia survey!

Who can complete the survey?

Adult (18 yrs+) men and women living in Australia

  • Who have haemophilia/carry the gene
  • OR who do NOT have a bleeding disorder (comparison group)

How to do the survey

It’s easy! Go to:

ANY QUESTIONS?

Visit the PROBE Australia Study section on the HFA website www.haemophilia.org.au
Or contact Suzanne at HFA:
E: socallaghan@haemophilia.org.au T: 1800 807 173

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