ALAN DURSUN
President, Haemophilia Foundation Australia
Alan Dursun was elected HFA President at the HFA Annual General Meeting on 18 October 2025.
Hello, I am Alan and I have severe haemophilia A. I am from NSW and currently serve as Vice President on the HFNSW Committee. My family has been involved in the Foundation since I was a child, and the community has always played a central role in my life. This year I had the privilege of attending the WFH Youth Leadership Program in Dubai, and I now represent Australia on the international program.
I am passionate about strengthening our community through connection, leadership, and lived experience. I want people with bleeding disorders to feel supported from the moment they are diagnosed, through every stage of life. I’ve seen firsthand how much difference the right information, a strong network, and genuine belonging can make.
My goal as President is to help create a national environment where every individual and family feels heard, represented, and empowered. I care deeply about developing future leaders, supporting our youth, and ensuring our entire community continues to grow with confidence and unity.
HFA held its AGM on 18 October 2025 in Brisbane. David Fagan from Tasmania continues in his role as Treasurer. We also welcomed our new Vice President, Claudio Damiani from the ACT. Claudio has served on the HFA Council since 2016, and we are fortunate to have his experience and insight in this new leadership role. We also thank Dan Credazzi from NSW for his commitment and service as past Vice President.
We would like to acknowledge and thank outgoing HFA President Gavin Finkelstein for his dedication over the past 20 years, both to HFA Council and to the bleeding disorders community in Western Australia. Gavin has made an extraordinary contribution at every level and will continue in an advisory capacity to support ongoing projects.
The Australian Bleeding Disorders Conference, held from 16-18 October 2025, was a huge success. More than 230 participants attended including people with bleeding disorders, their families and carers, health professionals, policy makers, and industry partners.
Across two days, we heard 77 presentations from 59 speakers, covering new and emerging therapies, newly diagnosed, ageing, women and girls with bleeding disorders, youth, and many other important topics. The mix of clinicians, experts, and community members gave the conference depth, shared learning, and a strong sense of connection.
We thank our sponsors – Gold: CSL Behring, Novo Nordisk, Roche and Sanofi; Silver: Pfizer and Takeda – for their ongoing support, and we thank all delegates for their participation.
Conference presentations are available on the HFA website – www.haemophilia.org.au/conference-2025.
This year’s Bleeding Disorders Awareness Month was another standout. October brought our community together through walks, runs, storytelling, school activities, fundraising events, and daily efforts to raise awareness.
Our theme for 2025, Teamwork: Pushing the boundaries, really came to life. People of all ages across Australia contributed in their own way, reinforcing how powerful our community is when we come together with a shared purpose.
Thank you to everyone who took part.
As we wrap up 2025, I want to thank you all for your support, your willingness to contribute, and your commitment to strengthening this community. I look forward to working with you in 2026 as we continue to build a strong, connected, and future-focused national foundation.
Wishing you a happy and safe festive season.
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