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No 232 December 2025

Front cover of National Haemophilia December 2025

With the theme of ‘Teamwork: pushing the boundaries’, both the 2025 Australian Bleeding Disorders Conference and Bleeding Disorders Awareness Month were exciting opportunities to put a spotlight on what’s new and emerging in bleeding disorders and coming together to achieve change. In this issue we have reports on Conference highlights and showcase Awareness Month in pictures.

In this issue

  • National Haemophilia Journal

Damon Courtenay Memorial Endowment Fund

  • 16 December 2025
Applications for the Damon Courtenay Memorial Endowment Fund are open until 16 January 2026. Grants are to support people with bleeding disorders.
Read more
  • National Haemophilia Journal

From the President

  • Alan Dursun -
New HFA President, Alan Dursun, introduces himself and his goals for the Australian bleeding disorders community.
Read more
  • National Haemophilia Journal

New HFA staff

  • 17 December 2025
Julia Broadbent has joined the HFA team as HFA Office Administrator.
Read more
  • National Haemophilia Journal

HFA Awards

  • 16 December 2025
The HFA Awards Program recognises special service to the Australian bleeding disorders community. Four awards were made in 2025.
Read more
  • National Haemophilia Journal

Gene therapy and you

  • Amanda Rush -
  • 16 December 2025
An Australian research study reports on the views of people with blood disorders, their carers, and the general public on gene therapy.
Read more
  • National Haemophilia Journal

Bleeding Disorders Awareness Month

  • 16 December 2025
We share our photo gallery of celebrating Bleeding Disorders Awareness Month in red during October 2025.
Read more
  • National Haemophilia Journal

World AIDS Day 2025

  • 16 December 2025
In 2025 the World AIDS Day theme 'no one left behind' asks us to show our support for our community affected by HIV and remember those we have lost.
Read more
  • National Haemophilia Journal

Gene and emerging therapies fact sheets

  • 16 December 2025
HFA has published haemophilia treatment fact sheets on clotting factor replacement therapy, bispecific antibody therapy, rebalancing therapies and gene therapy.
Read more
  • National Haemophilia Journal

AHCDO Targeted Research projects 2025

  • Ashley Fletcher -
  • 16 December 2025
In 2025 AHCDO funded three research projects to address key knowledge gaps and urgent needs in bleeding disorders.
Read more
  • National Haemophilia Journal

Australian Bleeding Disorders Conference 2025

  • 16 December 2025
The Australian Bleeding Disorders Conference 2025 was held at the VOCO Brisbane from 16 to 18 October 2025.
Read more
  • National Haemophilia Journal

Conference reflections – a Foundation perspective

  • Alan Dursun and Gavin Finkelstein -
  • 16 December 2025
The new and former HFA Presidents share their highlights and key take-aways from the Australian Bleeding Disorders Conference 2025.
Read more
  • National Haemophilia Journal

Von Willebrand disease (VWD)

  • Shauna Adams -
  • 16 December 2025
The von Willebrand disease (VWD) session at the 2025 Conference was both educational and uplifting.
Read more
  • National Haemophilia Journal

Living with Type 1 VWD

  • Tyler -
  • 16 December 2025
Tyler tells his personal story of living with Type 1 von Willebrand disease (VWD). Playing sport with precautions, improved medical awareness.
Read more
  • National Haemophilia Journal

VWD self-advocacy – your voice matters

  • Sophie -
  • 16 December 2025
Sophie tells her personal story of advocating for herself while pregnant and managing childbirth with Type 1 von Willebrand disease (VWD).
Read more
  • National Haemophilia Journal

Conference 2025 – Women and bleeding disorders

  • Suzanne O'Callaghan -
  • 16 December 2025
The session on women with bleeding disorders at the 2025 Conference explored a female-centric approach to treatment and care over the lifetime.
Read more
  • National Haemophilia Journal

Prof Cedric Hermans on new haemophilia treatments and more

  • 16 December 2025
Professor Cedric Hermans spoke with HFA about new and emerging haemophilia therapies, women and girls, and the importance of diagnosis.
Read more
  • National Haemophilia Journal

Conference 2025 – Lifestyle

  • Laura Bardell -
  • 16 December 2025
The Lifestyle plenary highlighted connection and teamwork with your Haemophilia Treatment Centre to empower people with bleeding disorders to live well.
Read more
  • National Haemophilia Journal

Conference 2025 – Getting older

  • Monique Manzanera -
  • 16 December 2025
The Getting Older session highlighted staying active, cardiovascular health, HIV, hepatitis C and liver health, future needs and comprehensive care.
Read more
  • National Haemophilia Journal

Conference 2025 – Stories, science, and strong connections

  • Yuhsuan Lin (Yoshi) -
  • 16 December 2025
The 2025 Conference spotlighted women, ageing with haemophilia and communicating before medical procedures.
Read more
  • National Haemophilia Journal

Conference 2025 – A physiotherapy perspective

  • Juana Chokvareeporn & Ellie Papantoniou -
  • 16 December 2025
The 2025 Conference highlighted groundbreaking novel therapies for bleeding disorders and how teamwork can transform lives.
Read more
  • National Haemophilia Journal

Youth at the Conference

  • Alan Dursun & Ben Inglis -
  • 16 December 2025
The Youth Program at the 2025 Conference brought together young people with bleeding disorders from around Australia to learn, connect and share experiences.
Read more
  • National Haemophilia Journal

Calendar

  • 16 December 2025
What's coming up in bleeding disorders?
Read more
  • National Haemophilia Journal

Seasons greetings

  • 16 December 2025
The HFA Council and staff wish you a happy and safe festive season.
Read more

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