Von Willebrand disease (VWD)

SHAUNA ADAMS

Shauna Adams is President, Haemophilia Foundation ACT and has VWD Type 3

One of my key takeaways from conference this year was that I really felt like there was something for me in every session. Most of the presentations were inclusive of all bleeding disorders and people who live with them.

Von Willebrand disease

Chair ~ Dr Sam Hitchins
Patient story ~ Tyler
Diagnosis and bleeding assessment tools ~ Dr Sam Hitchins
Current and emerging therapies ~ Dr Stephanie P’ng
Your voice matters – encouraging self-advocacy for individuals with VWD ~ Monique Manzanera & Sophie

The session on von Willebrand disease (VWD) at this year’s conference was no exception to this: it was both educating and uplifting. It is positive to see that advancements to treatment options are on the horizon for people with VWD, something that has not been as much in the forefront in the past. I can’t wait to hear more about developments in this space.

I really enjoyed the patient stories from Tyler and Sophie. While they both had very different stories to tell, the common theme was the importance of self-advocacy in living the life you want to lead as a person with a bleeding disorder. It really is possible to do anything you set your mind to with the support of your Treatment Centre!