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August has arrived and with it a new edition of National Haemophilia. This massive issue covers World Haemophilia Day, the Women Bleed Too survey results, and over 20 pages of WFH 2026 World Congress reports and reflections from our health professionals and community members.
Bleeding Disorders Awareness Month is only two short months away, coming up in October. Jasmin shares her and Lincoln’s story, describing how they brought their community together and raised awareness through hosting Red Cake Days.
The end of the year (and start of 2027) is jam-packed with State/Territory foundation events in ACT, NSW, QLD, VIC and WA. Scroll down for a list and details on how you can join in.
And don’t forget to have your say in the HFA National Survey. Closing at the end of August, this is your opportunity to shape the future of HFA’s services and activities.
Thank you for being part of our community 🥰
Share your feedback about HFA
Let us know how we can best provide services and be relevant to you and the bleeding disorders community now and in the future.
The HFA National Survey is an important opportunity to share your experience with our services, resources and programs, your suggestions on how to improve them and what you think is needed for the future.
We invite you to give your views on our priority areas, the effectiveness of our communication channels, the usefulness of our resources and your ideas on what else to cover.
Your feedback will help shape HFA for years to come. Please complete the survey by Monday 31 August 2026.
Read the latest National Haemophilia
The June 2026 National Haemophilia is now available to read in print and online. In this issue we share reports from the WFH World Congress, a photo gallery of World Haemophilia Day and the results of the HFA Women Bleed Too survey.
A huge thank you to everyone who contributes to National Haemophilia.
This issue features articles from Alan Dursun, Suzanne O’Callaghan, Claudio Damiani, Abi Polus, Hayley Coulson, Shirley Wong, Rosamma Varghese, Joanna McCosker, Jane Portnoy, Monique Manzanera, and personal stories/reflections from Jasmin, Ben, Dev, Frazer, Harrison, Javonte, Khali, Louie, Yamato and Nikolas.
Reports from WFH World Congress
The WFH 2026 World Congress in Kuala Lumpur, Malaysia brought together more than 1,900 delegates from 130 countries.
This included a wide range of people from the global bleeding disorders community – people with bleeding disorders, national member organisations like HFA, health professionals, researchers and industry.
Australia was well-represented – as speakers, poster presenters and as delegates. In this issue of National Haemophilia we feature over 20 pages of reports from delegates about sessions they attended and the key messages they took home from the discussions.
Women Bleed Too survey results
The HFA Women Bleed Too survey explored the experiences of Australian women and girls with bleeding disorders in health care settings, and what tools or resources can help.
In National Haemophilia we share the results – how many people participated, what their experiences have been, what tools and resources they’ve used, and what else is needed.
“I told every doctor I was a symptomatic carrier of haemophilia before major surgery last year. None took it seriously until I was a MET call post op. Bleeding into hip after a hip replacement.”
Red Cake Day – Jasmin and Lincoln’s story
Lincoln was diagnosed with haemophilia B at just 12 weeks old. Two weeks later, Jasmin held her first Red Cake Day, starting what would become a yearly tradition and an opportunity to connect, raise awareness, and foster a genuine sense of belonging.
10 years on, Lincoln has become an advocate in his own right, and a role model for other younger children and families.
“ [Red Cake Day] sparked conversations, built understanding and gave us a way to focus on raising awareness of bleeding disorders.”
🎈 Bleeding Disorders Awareness Month is held every year in October. You can host your own Red Cake Day – and get some fun, free promotional items – find out more.
What’s coming up?
Throughout the year, HFA and our State/Territory Foundations participate in awareness campaigns and host events to bring the community together. See what’s coming up on the calendar below.
HFQ Women’s Lunch – 9/8/2026
Waterloo Bay Hotel, QLD | RSVP to HFQ
HFWA Men’s Breakfast – 9/8/2026
Hampton City Beach, WA | RSVP to Gavin 0415 978 031
HFQ Townsville Regional Clinic – 20/8/2026
Townsville, Queensland
HFACT Playgroup – 23/8/2026
Sprouts Corner, ACT | RSVP to Laura 0409 830 472
HFQ Nurse Jo’s Farewell – 4/9/2026
Darling & Co, Brisbane, QLD | RSVP to HFQ
HFQ Mackay Regional Clinic – 10/9/2026
Mackay, Queensland
HFACT Menstrual Cycles & Wellbeing Workshop – 13/9/2026
Online via Zoom | RSVP to Laura 0409 830 472
Bleeding Disorders Awareness Month – October 2026
National Awareness Month | Find out more
HFQ Family Camp – 16-18/10/2026
BIG4 Gold Coast Holiday Park, QLD | More tickets released – contact HFQ
HFV BDAM Walk – 24/10/2026
Albert Park Lake, VIC | RSVP to HFV
HFACT Bleeding Disorders Clinic – 27/11/2026
Australian Capital Territory
HFNSW Family Camp – 27-29/11/2026
The Tops – Acacia Accom., Stanwell Tops, NSW | Book here
HFWA Family Camp – 29-31/01/2027
Point Walter Recreation & Conference Centre, Bicton WA | EOI to Fiona
HFV Community Camp – 16-18/04/2027
Lake Dewar, Myniong, VIC | Save the Date
