No 234 June 2026

Cover of National Haemophilia June 2026

In April the WFH 2026 World Congress took place in Kuala Lumpur, Malaysia and this issue features reports from Australian delegates on their highlights – ranging from sessions on women and girls with bleeding disorders to the latest in VWD, musculoskeletal, nursing and mental health issues. HFA was able to send 9 Australian youth delegates. In a special issue of Factored In they share what they learned and the insights they gained from their amazing experience. You can also see a photo gallery of World Haemophilia Day lit up red around Australia. And read the results of the HFA Women bleed too survey.

In this issue

Complete our national survey and let us know how HFA can best provide services and be relevant to the bleeding disorders community!
Alan Dursun, HFA President, reflects on the WFH World Congress, women and girls with bleeding disorders and other relevant news.
The 2026 version of the HFA red folder - Haemophilia: a guide for parents of a newly diagnosed child is now completed!
We are saddened by the passing of haemophilia community leader Ann Roberts on 23 March 2026.
Jasmin shares her story of raising awareness about haemophilia with her son Lincoln, who has haemophilia B.
Bleeding Disorders Awareness Month is coming up in October 2026. Find out how you can take part in activities to raise awareness.
In May 2026 HFA hosted a family day for the South Australian bleeding disorders community for a day of learning and fun.
Haemophilia Foundation Australia joined the global bleeding disorders community to mark World Haemophilia Day on 17 April 2026. See the photos!
The HFA Women Bleed Too survey explored the experiences of Australian women and girls with bleeding disorders in health care settings.
Australia was well-represented at the World Federation of Hemophilia 2026 World Congress as speakers, poster presenters and delegates.
Alan Dursun shares his reflections on the World Federation of Hemophilia 2026 World Congress and Global Youth Leadership Training.
Claudio Damiani speaks about what he learned about capacity building at the WFH Global National Member Organisation Training.
Cameron Cramey summarises some emerging research in musculoskeletal physiotherapy presented at the WFH 2026 World Congress.
Abi Polus reports on the WFH 2026 Congress, highlighting orthopaedic minimally invasive procedures, the elbow, the pelvic floor and pain.
Hayley Coulson reports on Congress about physical activity, musculoskeletal assessment and strength training for young people with bleeding disorders.
Shirley Wong reports on sessions about nurse-led clinics and multidisciplinary joint management at the WFH 2026 World Congress.
Rosamma Varghese reports on nursing sessions about inhibitor management and musculoskeletal bleeds at Congress.
Joanna McCosker reports on the Congress workshop to improve diagnosis and care for women and girls with bleeding disorders.
Jane Portnoy reports on Congress sessions about adherence to treatment and chronic fatigue in women and girls.
Monique Manzanera reports on a Congress session on resilience and recovery with practical coping strategies for mental wellbeing.
Suzanne O'Callaghan reports on a Congress session on VWD diagnosis and treatment, including emerging therapies.
Nine Australian youth delegates share their reflections on the WFH 2026 World Congress and their interviews with other Congress delegates.

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