Items tagged 'Personal stories'

Blessed in a different way

Simoni and Javonte -
18 March 2026

Bleeding disorders, Boys, Connection & Support, Girls, Growing up with a bleeding disorder, Haemophilia, Personal stories, Sport & exercise, Von Willebrand disease, Young people
haemophilia, VWD, Youth

Simoni and Javonte caught up to talk about growing up with a bleeding disorder, treatment, playing sport and why it's important to share your story.

Simoni and Javonte – growing up with a rare bleeding disorder

26 February 2026

Simoni and Javonte chat about growing up with VWD type 3 and severe haemophilia

Carly’s story: Life with Glanzmann thrombasthenia

26 February 2026

Carly is 22 and talks about living with Glanzmann thrombasthenia as a young person and the value of support, living your life, and putting your health first.

Bel’s story: Navigating factor X deficiency

23 February 2026

Bel talks about living with factor X deficiency, a rare bleeding disorder that affects the blood's ability to clot.

Youth at the Conference

22 December 2025

At the Conference young people with bleeding disorders came together from around Australia to learn, connect and share experiences.

VWD self-advocacy – your voice matters

Sophie -
16 December 2025

Sophie tells her personal story of advocating for herself while pregnant and managing childbirth with Type 1 von Willebrand disease (VWD).

Nicola and Will – playing competitive sport with haemophilia

2 December 2025

Nicola and her son, Will, share their journey with haemophilia and playing elite level sport

Navigating factor X deficiency

Jen Dowbnia and Lara Olson -
17 September 2025

How do haemophilia nurses support people with factor X (10) deficiency? And Bel shares her personal story.

Playing competition sport

Will -
17 September 2025

Will tells his story of playing competition soccer and how he manages his haemophilia to play high level sport.

Supporting our children with bleeding disorders in sport

Nicola -
17 September 2025

Will has haemophilia and plays competition soccer. His mother tells the story of his journey to play high level sport.

Items tagged 'Personal stories'

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