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Bleeding Disorders
FAQs & Fast Facts
Haemophilia
Von Willebrand Disease
Other Bleeding Disorders
Acquired haemophilia
Factor I Deficiency
Factor II Deficiency
Factor V Deficiency
Combined Factor V and Factor VIII Deficiency
Factor VII Deficiency
Factor X Deficiency
Factor XI Deficiency
Factor XIII Deficiency
Inherited platelet function disorders
Glanzmann thrombasthenia
Women with Bleeding Disorders
Hepatitis C & HIV
Hepatitis C
HIV
Living with a Bleeding Disorder
Gene & Emerging Therapies Hub
Youth – Factored In
Getting Older Hub
Travel
Personal Stories
Telling Others
Resources
National Haemophilia Journal
Find an article
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Reports
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Ordering HFA print publications
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Find a treatment centre
State & Territory Foundations
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Items tagged 'Young people'
National Haemophilia Journal
Australian youth at Congress
Youth Congress delegates -
30 June 2026
Bleeding disorders
,
Conferences and meetings
,
International connections
,
Young people
bleeding disorders
,
girls
,
treatment
,
WFH World Congress
,
Women
,
Youth
Nine Australian youth delegates share their reflections on the WFH 2026 World Congress and their interviews with other Congress delegates.
Read more
National Haemophilia Journal
Congress – Musculoskeletal health in children and young people
Hayley Coulson -
30 June 2026
Bleeding disorders
,
Conferences and meetings
,
Joints & muscles
,
Treatment & care
,
Young people
bleeding disorders
,
exercise
,
haemophilia
,
musculoskeletal management
,
physiotherapy
,
strength training
,
WFH World Congress
,
Youth
Hayley Coulson reports on Congress about physical activity, musculoskeletal assessment and strength training for young people with bleeding disorders.
Read more
National Haemophilia Journal
Congress and WFH Global Youth Training
Alan Dursun -
30 June 2026
Bleeding disorders
,
Conferences and meetings
,
Leadership & mentoring
,
Young people
WFH General Assembly
,
WFH World Congress
,
youth leadership
Alan Dursun shares his reflections on the World Federation of Hemophilia 2026 World Congress and Global Youth Leadership Training.
Read more
News & Stories
Fernando on guitar for World Music Day
21 June 2026
Haemophilia
,
HFA & Foundation news
,
Personal stories
,
Young people
World Music Day
11yo Fernando plays Paradise by Coldplay for World Music Day
Read more
News & Stories
Youth videos from Congress
1 June 2026
HFA & Foundation news
,
Young people
WFH World Congress
Nine young Aussies with bleeding disorders share their experience at WFH World Congress in Malaysia
Read more
National Haemophilia Journal
Behind the scenes of haemophilia care
Nikki Waters and Rhiannon Staveley-Smith -
19 March 2026
Haemophilia
,
Transition (to adulthood)
,
Treatment & care
,
Young people
haemophilia
,
HTC
,
nursing care
,
transition
,
Youth
Paediatric haemophilia nurses describe what they learned about transition from child to adult haemophilia care during a visit to an adult HTC.
Read more
National Haemophilia Journal
Blessed in a different way
Simoni and Javonte -
18 March 2026
Bleeding disorders
,
Boys
,
Connection & Support
,
Girls
,
Growing up with a bleeding disorder
,
Haemophilia
,
Personal stories
,
Sport & exercise
,
Von Willebrand disease
,
Young people
haemophilia
,
VWD
,
Youth
Simoni and Javonte caught up to talk about growing up with a bleeding disorder, treatment, playing sport and why it's important to share your story.
Read more
News & Stories
Simoni and Javonte – growing up with a rare bleeding disorder
26 February 2026
Growing up with a bleeding disorder
,
Haemophilia
,
Personal stories
,
Von Willebrand disease
,
Young people
interview
Simoni and Javonte chat about growing up with VWD type 3 and severe haemophilia
Read more
News & Stories
Youth at the Conference
22 December 2025
Conferences and meetings
,
Connection & Support
,
Personal stories
,
Young people
Australian Bleeding Disorders Conference
,
social connection
,
Youth
,
youth leadership
At the Conference young people with bleeding disorders came together from around Australia to learn, connect and share experiences.
Read more
National Haemophilia Journal
Youth at the Conference
Alan Dursun & Ben Inglis -
16 December 2025
Conferences and meetings
,
Recreation & lifestyle
,
Young people
conference
,
Connection & Peer Support
,
Youth
,
youth leadership
The Youth Program at the 2025 Conference brought together young people with bleeding disorders from around Australia to learn, connect and share experiences.
Read more
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