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Items tagged 'rare clotting factor deficiencies'

  • National Haemophilia Journal

Being rare

  • Adam, Bel and Tayla -
  • 26 March 2025
Adam, Bel and Tayla share their experiences of growing up with a very rare bleeding disorder and what they learned along the way.
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  • National Haemophilia Journal

Navigating challenges at school

  • Emma Wells -
  • 11 December 2024
How to deal with problems at school if your child has a bleeding disorder like haemophilia, von Willebrand disease (VWD) or other rare bleeding disorders.
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  • National Haemophilia Journal

Endoscopies – what might I need to know?

  • Sue Webzell -
  • 11 December 2024
Special considerations with endoscopy, gastroscopy or colonoscopy for people with haemophilia, VWD and other bleeding disorders.
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  • National Haemophilia Journal

Rare bleeding disorders

  • Stephen Matthews -
  • 11 December 2023

STEPHEN MATTHEWS Stephen Matthews is Clinical Nurse Consultant Haemophilia at the Royal Prince Alfred Hospital, Sydney, NSW Rare bleeding disordersChair…

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  • National Haemophilia Journal

Congenital fibrinogen disorders

  • Radha Ramanan -
  • 12 September 2023

RADHA RAMANAN Dr Radha Ramanan is the current Australian Haemophilia Centre Directors’ Organisation (AHCDO) Research Fellow.  Dr Radha Ramanan received…

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  • National Haemophilia Journal

Conference 2023

  • 26 June 2023

The 21st Australian Conference on haemophilia, VWD & rare bleeding disorders will be held face-to-face at the Pullman on the…

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  • National Haemophilia Journal

2023 Conference

  • 20 March 2023

The 21st Australian Conference on haemophilia, VWD & rare bleeding disorders will be held face to face at the Pullman…

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  • National Haemophilia Journal

Rare Disease Day 2022

  • 14 March 2022

Rare Disease Day is celebrated worldwide on 28 February to raise awareness about the experiences of people with rare diseases. The…

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  • National Haemophilia Journal

2021 Conference

  • 13 December 2021

The 20th Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders was held 8-9 October 2021. The event was a…

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  • National Haemophilia Journal

2021 Conference

  • 16 September 2021

The virtual 20th Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders, 8-9 October 2021 is shaping up well, with a…

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