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Bleeding Disorders
FAQs & Fast Facts
Haemophilia
Von Willebrand Disease
Other Bleeding Disorders
Acquired haemophilia
Factor I Deficiency
Factor II Deficiency
Factor V Deficiency
Combined Factor V and Factor VIII Deficiency
Factor VII Deficiency
Factor X Deficiency
Factor XI Deficiency
Factor XIII Deficiency
Inherited platelet function disorders
Glanzmann thrombasthenia
Women with Bleeding Disorders
Hepatitis C & HIV
Hepatitis C
HIV
Living with a Bleeding Disorder
Gene & Emerging Therapies Hub
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Getting Older Hub
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Telling Others
Resources
National Haemophilia Journal
Find an article
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Find a treatment centre
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Items tagged 'VWD'
National Haemophilia Journal
Congress – von Willebrand disease (VWD)
Suzanne O'Callaghan -
30 June 2026
Conferences and meetings
,
New treatments
,
Treatment & care
,
Von Willebrand disease
diagnosis
,
Gene and emerging therapies
,
treatment
,
VWD
,
WFH World Congress
Suzanne O'Callaghan reports on a Congress session on VWD diagnosis and treatment, including emerging therapies.
Read more
News & Stories
TJ’s path to independence with VWD
27 April 2026
Boys
,
Parents & families
,
Personal stories
,
Von Willebrand disease
VWD
Sam, mother to 7-year-old TJ, shares her story about raising a young son with type 2A VWD
Read more
National Haemophilia Journal
Blessed in a different way
Simoni and Javonte -
18 March 2026
Bleeding disorders
,
Boys
,
Connection & Support
,
Girls
,
Growing up with a bleeding disorder
,
Haemophilia
,
Personal stories
,
Sport & exercise
,
Von Willebrand disease
,
Young people
haemophilia
,
VWD
,
Youth
Simoni and Javonte caught up to talk about growing up with a bleeding disorder, treatment, playing sport and why it's important to share your story.
Read more
National Haemophilia Journal
New and emerging treatments for von Willebrand disease (VWD)
Ashley Fletcher -
18 March 2026
Treatment & care
,
Von Willebrand disease
emerging therapies
,
VWD
An overview of new and emerging VWD therapies currently being studied. Most are experimental but show promising directions for future care.
Read more
National Haemophilia Journal
Conference 2025 – Women and bleeding disorders
Suzanne O'Callaghan -
16 December 2025
Bleeding disorders
,
Conferences and meetings
,
Treatment & care
,
Women & girls
girls
,
haemophilia
,
heavy menstrual bleeding
,
lifetime
,
treatment
,
VWD
,
Women
The session on women with bleeding disorders at the 2025 Conference explored a female-centric approach to treatment and care over the lifetime.
Read more
National Haemophilia Journal
VWD self-advocacy – your voice matters
Sophie -
16 December 2025
Advocacy
,
Conferences and meetings
,
Parents & families
,
Personal stories
,
Von Willebrand disease
,
Women & girls
childbirth
,
pregnancy
,
self-advocacy
,
VWD
,
Women
Sophie tells her personal story of advocating for herself while pregnant and managing childbirth with Type 1 von Willebrand disease (VWD).
Read more
National Haemophilia Journal
Living with Type 1 VWD
Tyler -
16 December 2025
Conferences and meetings
,
Von Willebrand disease
,
Young people
sport
,
treatment
,
VWD
Tyler tells his personal story of living with Type 1 von Willebrand disease (VWD). Playing sport with precautions, improved medical awareness.
Read more
National Haemophilia Journal
Von Willebrand disease (VWD)
Shauna Adams -
16 December 2025
Conferences and meetings
,
Von Willebrand disease
VWD
The von Willebrand disease (VWD) session at the 2025 Conference was both educational and uplifting.
Read more
National Haemophilia Journal
ISTH 2025 – emerging therapies in haemophilia and VWD
Ashley Fletcher -
17 September 2025
Bleeding disorders
,
Haemophilia
,
Research
,
Treatment & care
,
Von Willebrand disease
emerging therapies
,
haemophilia
,
VWD
At ISTH 2025 researchers shared advances in emerging therapies for haemophilia and von Willebrand disease (VWD).
Read more
News & Stories
Being rare
19 June 2025
Boys
,
Girls
,
Growing up with a bleeding disorder
,
Personal stories
,
Rare bleeding disorders
,
Young people
boys
,
factor X deficiency
,
girls
,
haemophilia
,
VWD
,
Youth
What’s it like to grow up with a very rare bleeding disorder? Some of our community members talk about their experiences.
Read more
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