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Bleeding Disorders
FAQs & Fast Facts
Haemophilia
Von Willebrand Disease
Other Bleeding Disorders
Acquired haemophilia
Factor I Deficiency
Factor II Deficiency
Factor V Deficiency
Combined Factor V and Factor VIII Deficiency
Factor VII Deficiency
Factor X Deficiency
Factor XI Deficiency
Factor XIII Deficiency
Inherited platelet function disorders
Glanzmann thrombasthenia
Women with Bleeding Disorders
Hepatitis C & HIV
Hepatitis C
HIV
Living with a Bleeding Disorder
Gene & Emerging Therapies Hub
Youth – Factored In
Getting Older Hub
Travel
Personal Stories
Telling Others
Resources
National Haemophilia Journal
Find an article
Publications
Reports
Videos & Webinars
Ordering HFA print publications
Support & Services
Find a treatment centre
State & Territory Foundations
Health professional groups
ABDR & MyABDR
Useful Links
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Latest Information
World Haemophilia Day
Bleeding Disorders Awareness Month
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Items tagged 'Von Willebrand disease'
News & Stories
TJ’s path to independence with VWD
27 April 2026
Boys
,
Parents & families
,
Personal stories
,
Von Willebrand disease
VWD
Sam, mother to 7-year-old TJ, shares her story about raising a young son with type 2A VWD
Read more
News & Stories
VWD: Your voice matters – Sophie’s story
7 April 2026
Family Planning and Pregnancy
,
Personal stories
,
Von Willebrand disease
,
Women & girls
Sophie talks about being diagnosed with VWD in her 20s, pregnancy, and advocating for yourself and others
Read more
National Haemophilia Journal
Blessed in a different way
Simoni and Javonte -
18 March 2026
Bleeding disorders
,
Boys
,
Connection & Support
,
Girls
,
Growing up with a bleeding disorder
,
Haemophilia
,
Personal stories
,
Sport & exercise
,
Von Willebrand disease
,
Young people
haemophilia
,
VWD
,
Youth
Simoni and Javonte caught up to talk about growing up with a bleeding disorder, treatment, playing sport and why it's important to share your story.
Read more
National Haemophilia Journal
New and emerging treatments for von Willebrand disease (VWD)
Ashley Fletcher -
18 March 2026
Treatment & care
,
Von Willebrand disease
emerging therapies
,
VWD
An overview of new and emerging VWD therapies currently being studied. Most are experimental but show promising directions for future care.
Read more
News & Stories
Simoni and Javonte – growing up with a rare bleeding disorder
26 February 2026
Growing up with a bleeding disorder
,
Haemophilia
,
Personal stories
,
Von Willebrand disease
,
Young people
interview
Simoni and Javonte chat about growing up with VWD type 3 and severe haemophilia
Read more
National Haemophilia Journal
VWD self-advocacy – your voice matters
Sophie -
16 December 2025
Advocacy
,
Conferences and meetings
,
Parents & families
,
Personal stories
,
Von Willebrand disease
,
Women & girls
childbirth
,
pregnancy
,
self-advocacy
,
VWD
,
Women
Sophie tells her personal story of advocating for herself while pregnant and managing childbirth with Type 1 von Willebrand disease (VWD).
Read more
National Haemophilia Journal
Living with Type 1 VWD
Tyler -
16 December 2025
Conferences and meetings
,
Von Willebrand disease
,
Young people
sport
,
treatment
,
VWD
Tyler tells his personal story of living with Type 1 von Willebrand disease (VWD). Playing sport with precautions, improved medical awareness.
Read more
National Haemophilia Journal
Von Willebrand disease (VWD)
Shauna Adams -
16 December 2025
Conferences and meetings
,
Von Willebrand disease
VWD
The von Willebrand disease (VWD) session at the 2025 Conference was both educational and uplifting.
Read more
National Haemophilia Journal
ISTH 2025 – emerging therapies in haemophilia and VWD
Ashley Fletcher -
17 September 2025
Bleeding disorders
,
Haemophilia
,
Research
,
Treatment & care
,
Von Willebrand disease
emerging therapies
,
haemophilia
,
VWD
At ISTH 2025 researchers shared advances in emerging therapies for haemophilia and von Willebrand disease (VWD).
Read more
National Haemophilia Journal
VWD fact sheet
17 June 2025
Von Willebrand disease
VWD
The HFA VWD fact sheet is simple information about von Willebrand disease (VWD) to share with others.
Read more
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