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Bleeding Disorders
FAQs & Fast Facts
Haemophilia
Von Willebrand Disease
Other Bleeding Disorders
Acquired haemophilia
Factor I Deficiency
Factor II Deficiency
Factor V Deficiency
Combined Factor V and Factor VIII Deficiency
Factor VII Deficiency
Factor X Deficiency
Factor XI Deficiency
Factor XIII Deficiency
Inherited platelet function disorders
Glanzmann thrombasthenia
Women with Bleeding Disorders
Hepatitis C & HIV
Hepatitis C
HIV
Living with a Bleeding Disorder
Gene & Emerging Therapies Hub
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Getting Older Hub
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Telling Others
Resources
National Haemophilia Journal
Find an article
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State & Territory Foundations
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Items tagged 'Newly diagnosed'
National Haemophilia Journal
Congress – improving diagnosis and care for WGBD
Joanna McCosker -
30 June 2026
Conferences and meetings
,
Treatment & care
,
Women & girls
comprehensive care
,
diagnosis
,
girls
,
WFH World Congress
,
Women
Joanna McCosker reports on the Congress workshop to improve diagnosis and care for women and girls with bleeding disorders.
Read more
National Haemophilia Journal
Congress – Resilience and recovery
Monique Manzanera -
30 June 2026
Conferences and meetings
,
Mental wellbeing
mental health
,
recovery
,
resilience
,
WFH World Congress
Monique Manzanera reports on a Congress session on resilience and recovery with practical coping strategies for mental wellbeing.
Read more
National Haemophilia Journal
Congress and WFH Global Youth Training
Alan Dursun -
30 June 2026
Bleeding disorders
,
Conferences and meetings
,
Leadership & mentoring
,
Young people
WFH General Assembly
,
WFH World Congress
,
youth leadership
Alan Dursun shares his reflections on the World Federation of Hemophilia 2026 World Congress and Global Youth Leadership Training.
Read more
National Haemophilia Journal
HFA National Survey 2026
30 June 2026
Advocacy
,
Connection & Support
,
HFA & Foundation news
evaluation
,
HFA
,
representation
Complete our national survey and let us know how HFA can best provide services and be relevant to the bleeding disorders community!
Read more
National Haemophilia Journal
HFA Women bleed too survey
Suzanne O'Callaghan -
30 June 2026
Advocacy
,
Bleeding disorders
,
Research
,
Women & girls
girls
,
health care settings
,
self-advocacy
,
surveys
,
Women
The HFA Women Bleed Too survey explored the experiences of Australian women and girls with bleeding disorders in health care settings.
Read more
National Haemophilia Journal
Newly diagnosed with haemophilia guide
30 June 2026
Haemophilia
,
Newly diagnosed
,
Parents & families
haemophilia
,
Newly diagnosed
The 2026 version of the HFA red folder - Haemophilia: a guide for parents of a newly diagnosed child is now completed!
Read more
National Haemophilia Journal
South Australia Family Day
30 June 2026
Bleeding disorders
,
Connection & Support
,
HFA & Foundation news
Connection & Peer Support
,
information
,
South Australia
In May 2026 HFA hosted a family day for the South Australian bleeding disorders community for a day of learning and fun.
Read more
National Haemophilia Journal
World Haemophilia Day 2026
30 June 2026
Bleeding disorders
,
Events & awareness
,
HFA & Foundation news
awareness
,
Light It up Red
,
World Haemophilia Day
Haemophilia Foundation Australia joined the global bleeding disorders community to mark World Haemophilia Day on 17 April 2026. See the photos!
Read more
National Haemophilia Journal
WFH 2026 World Congress
30 June 2026
Bleeding disorders
,
Conferences and meetings
,
HFA & Foundation news
,
International connections
WFH World Congress
Australia was well-represented at the World Federation of Hemophilia 2026 World Congress as speakers, poster presenters and delegates.
Read more
National Haemophilia Journal
From the President
Alan Dursun -
30 June 2026
Advocacy
,
Conferences and meetings
,
HFA & Foundation news
,
Women & girls
blood supply
,
girls
,
Lifeblood
,
representation
,
WFH World Congress
,
Women
Alan Dursun, HFA President, reflects on the WFH World Congress, women and girls with bleeding disorders and other relevant news.
Read more
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