Items tagged 'National Haemophilia Journal'

Bleeding Disorders Awareness Month is coming up in October 2024. How can you take part? Order your promotional items now!
HFA's haemophilia gene therapy snapshot survey asked people and parents of children with haemophilia what outcomes they would like from treatment now and in the future.
Heading to the end of the year, we review our progress. Gene and emerging therapies are on the agenda, and Bleeding Disorders Awareness Month is coming up.
HFA's short video for teenage males answers the question, will males with haemophilia pass it on to their children - and how are genes involved?
Exciting new haemophilia treatments using a range of innovative technologies were highlighted at ISTH 2024 Congress.
With new haemophilia treatments, recording on MyABDR has some challenges. HTCs and users share their tips.
Elizabeth shares her experiences of parenting her teenage daughter Grace who has Glanzmann thrombasthenia, a rare hereditary platelet function disorder.
World Hepatitis Day 2024 reminds us It’s time for action - hepatitis C and liver health remain important issues for our community and acting now is vital.
What's coming up in bleeding disorders?
How can young people with bleeding disorders find the direction for their career and take the first steps in employment?

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