Items tagged 'National Haemophilia Journal'

Are your details up-to-date?

26 March 2025

If your contact details have changed, let us know with an email or by filling in the online form.

Australian Bleeding Disorders Conference

26 March 2025

Haemophilia Foundation Australia is convening the 2025 Australian Bleeding Disorders Conference in Brisbane on 16-18 October 2025.

Being rare

Adam, Bel and Tayla -
26 March 2025

Boys, Girls, Growing up with a bleeding disorder, Personal stories, Rare bleeding disorders, Young people
haemophilia, rare clotting factor deficiencies, VWD, Youth

Adam, Bel and Tayla share their experiences of growing up with a very rare bleeding disorder and what they learned along the way.

Calendar

26 March 2025

Events & awareness

What's happening in bleeding disorders?

Can you help with the PROBE study

26 March 2025

HFA is still recruiting people to complete the PROBE Australia Study.

Do you have a bleeding disorder

Kara Cordiner -
26 March 2025

The ISTH International Bleeding Assessment Tool (ISTH-BAT) is a standardized scoring system to evaluate if you may have a bleeding disorder.

Exercise and movement for persistent pain

Cameron Cramey -
26 March 2025

Exercise and movement are an effective way to manage persistent pain for people with bleeding disorders.

From the President

Gavin Finkelstein -
26 March 2025

It is a great start to 2025. HFA has hit the ground running, with new initiatives as well as World Haemophilia Day and the Conference coming up this year.

Gene and emerging therapies in haemophilia

Ashley Fletcher -
26 March 2025

Exciting advancements in gene therapy and other emerging treatments for haemophilia were presented at the Blood 2024 conference.

Rare Disease Day 2025

26 March 2025

Rare Disease Day was celebrated on 28 February 2025 to raise awareness and generate change for people with rare diseases, including rare bleeding disorders.

Items tagged 'National Haemophilia Journal'

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