No 230 June 2025

Front cover of June 2025 National Haemophilia

Women and girls bleed too was the theme for World Haemophilia Day in 2025. In this issue we showcase the events around Australia to light it up red in support of all bleeding disorders, along with articles on identifying affected females and period products. We have reports from EAHAD and the WFH Comprehensive Care Summit on new therapies and approaches to bleeding disorders and MSK challenges, and we hear Alan’s experience of the WFH Global Youth Leadership training.

In this issue

With new treatments and new security measures, access to MyABDR can sometimes need a tweak or two to work smoothly. …

So much is happening and changing very quickly - hepatitis C, women and girls, the conference and new therapies.
It has been a rewarding year supporting research with data collected in the Australian Bleeding Disorders Registry (ABDR).

Haemophilia Foundation Australia joined the global bleeding disorders community to mark World Haemophilia Day on Thursday 17 April 2025. World…

The Australian Bleeding Disorders Conference will take place at VOCO Brisbane from Thursday 16 to Saturday 18 October 2025. EARLY…

Knowing how to manage menstrual bleeding, sanitary products and how to use them before starting your periods can help you feel more confident.
Queensland HTC clinics aim to identify females who are haemophilia carriers and provide testing and treatment.
EAHAD 2025 explored haemophilia management challenges - psychological issues, women and menopause, and aged care.
The WFH Comprehensive Care Summit 2025 in Dubai focused on new developments in bleeding disorders and musculoskeletal issues.
Musculoskeletal challenges in haemophilia were a major focus of the 2025 WFH CCS Summit, including non-severe haemophilia.
Clinicians who use point-of-care ultrasound (POC-US) report joint changes after sub-clinical bleeds in haemophilia.
WFH CCS topics included health literacy in shared decision-making, new therapies for VWD and women and girls with bleeding disorders.
The HFA VWD fact sheet is simple information about von Willebrand disease (VWD) to share with others.
Alan talks about his experiences at WFH youth leadership training and how it has inspired him with developing youth activities in Australia.
What's happening in bleeding disorders?

Join the HFA community

Sign up for the latest news, events and our free National Haemophilia magazine

Skip to content