No 231 September 2025

National Haemophilia September 2025

With the Australian Bleeding Disorders Conference coming up in October 2025, the Co-chairs share their reflections on this unique event. Other topics in this bumper issue include emerging therapies, hepatitis C, haemophilia and bone density, factor X deficiency, transition to paediatric to adult services and competition sport for teenagers with bleeding disorders.

In this issue

What education materials would help with using the MyABDR app? Complete the HFA survey to give your views.
HFA's hepatitis C advocacy for our bleeding disorders community aims to address ongoing impacts: recognition and financial and support needs.
On World Hepatitis Day 28 July 2025 we come together globally to share the message It’s time for action on hepatitis C and liver health.
In October 2025, we are raising awareness of bleeding disorders in Australia with Bleeding Disorders Awareness Month.
The Australian Bleeding Disorders Conference will be held in Brisbane from 16-18 October 2025. Find out more and register now!
The Co-Chairs of the 2025 Conference explain what’s special about the Australian Bleeding Disorders Conference.
At ISTH 2025 researchers shared advances in emerging therapies for haemophilia and von Willebrand disease (VWD).
Haemophilia physiotherapist Abi Polus explains low bone density and why people with haemophilia can have osteoporosis and fractures.
How do haemophilia nurses support people with factor X (10) deficiency? And Bel shares her personal story.
How can young people with bleeding disorders make the transition from paediatric to adult care without falling through the cracks?
Will has haemophilia and plays competition soccer. His mother tells the story of his journey to play high level sport.
Help us reach our PROBE Australia Study targets. We still need about 90 men without a bleeding disorder to complete the survey.
Will tells his story of playing competition soccer and how he manages his haemophilia to play high level sport.
What's coming up in bleeding disorders?

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