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Items tagged 'outcomes'

  • National Haemophilia Journal

Can you help with the PROBE study

  • 26 March 2025
HFA is still recruiting people to complete the PROBE Australia Study.
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  • National Haemophilia Journal

Haemophilia Treatment Preferences Survey

  • CaPPRe -
  • 26 March 2025

(HaemPref Survey) How do individuals make decisions about treatment? What factors encourage or discourage patients from treatments? What are individuals’…

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  • National Haemophilia Journal

Can you help with PROBE?

  • 11 December 2024
People without a bleeding disorder are also needed for the PROBE Australia Study to research the impact of haemophilia.
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  • National Haemophilia Journal

Haemophilia gene therapy snapshot survey

  • Suzanne O'Callaghan -
  • 11 September 2024
HFA's haemophilia gene therapy snapshot survey asked people and parents of children with haemophilia what outcomes they would like from treatment now and in the future.
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Haemophilia Foundation Australia

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