One year with the ABDR

ASHLEY FLETCHER

Ashley Fletcher is the AHCDO Australian Bleeding Disorders Registry (ABDR) Research Fellow.

Supporting better outcomes through research

It’s been a full and rewarding year in my role as the ABDR Research Fellow. Over the past 12 months, I’ve worked closely with clinicians, data managers, and the National Blood Authority to ensure the data collected in the Australian Bleeding Disorders Registry (ABDR) is used to improve care for people with bleeding disorders.

I’ve helped progress research into treatment patterns, outcomes for people switching to newer therapies like emicizumab (Hemlibra®), von Willebrand disease and Bleeding Disorders of Unknown Cause (BDUC). I’ve also worked on strengthening the way research is conducted and reported using ABDR data, so it has the greatest possible impact – informing clinical practice, training specialists, and supporting better access to treatments.

Thank you to the community for your ongoing contribution to the ABDR – it’s your data that drives this important work.