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Items tagged 'ABDR'

  • National Haemophilia Journal

The National Blood Authority

  • Jo Cameron -
  • 18 March 2026
Jo Cameron explains who the National Blood Authority is and what it does with product funding, horizon scanning and the ABDR.
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  • National Haemophilia Journal

Why test for haemophilia in women and girls?

  • 18 March 2026
Testing for haemophilia in women and girls is crucial as many are not yet diagnosed and registered with the national Bleeding Disorders Registry.
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  • National Haemophilia Journal

One year with the ABDR

  • Ashley Fletcher -
  • 17 June 2025
It has been a rewarding year supporting research with data collected in the Australian Bleeding Disorders Registry (ABDR).
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  • National Haemophilia Journal

AHCDO research

  • Caitlin Rice -
  • 26 June 2024
Caitlin Rice is undertaking research projects on VWD type 3 and acquired haemophilia A for AHCDO and will use ABDR data for these projects.
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  • National Haemophilia Journal

New AHCDO ABDR Research Fellow

  • 26 June 2024
AHCDO is pleased to welcome Ashley Fletcher as the new Australian Bleeding Disorders Registry (ABDR) Research Fellow.
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  • National Haemophilia Journal

Taking care of your ABDR data

  • Julia Ekert, Marina Goruppi, Linda Mason and Deirdre Tuck -
  • 26 June 2023

ABDR Data Managers Julia, Marina, Linda and Deirdre spoke to HFA about their role with Australian Bleeding Disorders Registry (ABDR)…

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  • National Haemophilia Journal

AHCDO update

  • Andrea Johannessen -
  • 12 December 2022

ANDREA JOHANNESSEN Dr Andrea Johannessen is AHCDO Executive Officer GENE THERAPY ROADMAP The Australian Haemophilia Centre Directors' Organisation (AHCDO) has…

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  • National Haemophilia Journal

Measuring joint health in haemophilia

  • Sumit Parikh -
  • 23 March 2021

SUMIT PARIKH Dr Sumit Parikh is the AHCDO ABDR Senior Research Fellow  How can haemophilia treatment outcomes be measured? The…

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  • National Haemophilia Journal

Uptake of MyABDR in Australia

  • Sumit Parikh -
  • 14 September 2020

SUMIT PARIKH Sumit Parikh is the AHCDO ABDR Senior Research Fellow With COVID-19 gripping the entire world, the ISTH Congress,…

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  • National Haemophilia Journal

Uptake of hep C treatment

  • Sumit Parikh -
  • 5 December 2018

Uptake of hepatitis C direct acting antiviral (DAA) treatment SUMIT PARIKH Dr Sumit Parikh is the AHCDO ABDR Senior Research…

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