Carly is 22 and talks about living with Glanzmann thrombasthenia as a young person and the value of support, living your life, and putting your health first.

Telling daughters: Zev’s story

26 August 2025

Growing up with a bleeding disorder, Haemophilia, Parents & families, Personal stories

'Make it a family conversation'. Zev shares his advice for talking to daughters about haemophilia

Being rare

19 June 2025

What’s it like to grow up with a very rare bleeding disorder? Some of our community members talk about their experiences.

Being rare

Adam, Bel and Tayla -
26 March 2025

Adam, Bel and Tayla share their experiences of growing up with a very rare bleeding disorder and what they learned along the way.

Growing up with VWD

18 December 2024

Cassie's personal story of growing up with von Willebrand disease (VWD) and learning to manage her heavy periods.

Growing up with VWD

Cassie -
11 December 2024

Cassie's personal story of growing up with von Willebrand disease (VWD) and learning to manage her heavy periods.

Items tagged 'Growing up with a bleeding disorder'

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