Items tagged 'outcome measures'

Why is PROBE important?

19 March 2024

The PROBE Australia Study is how HFA is building evidence about the needs of men and women affected by haemophilia in Australia. Here's how you can help.

Haemophilia treatment survey

Suzanne O'Callaghan -
20 March 2023

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager What information does our community want about new haemophilia…

Quality of life in a changing world

Suzanne O'Callaghan -
14 September 2020

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager What does quality of life mean to you? Living…

What have we learned from PROBE?

Suzanne O'Callaghan -
14 September 2020

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager If you saw the PROBE data about ageing and…

PROBE for real-world evidence

12 June 2019

The real-world PROBE study is now available! WHY IS THE PROBE STUDY IMPORTANT? What is the impact of haemophilia and…

PROBE Study Phase 2 results

3 December 2018

How can HFA have access to good quality data about the treatment and health experiences of Australians with bleeding disorders?…

Reflections on the Congress

Sharon Caris -
17 September 2018

SHARON CARIS Sharon Caris is Executive Director, Haemophilia Foundation Australia Each Congress I have attended has flagged new hope, and…