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Items tagged 'gene therapy'

  • National Haemophilia Journal

Gene and emerging therapies in haemophilia

  • Ashley Fletcher -
  • 26 March 2025
Exciting advancements in gene therapy and other emerging treatments for haemophilia were presented at the Blood 2024 conference.
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  • National Haemophilia Journal

Haemophilia Treatment Preferences Survey

  • CaPPRe -
  • 26 March 2025

(HaemPref Survey) How do individuals make decisions about treatment? What factors encourage or discourage patients from treatments? What are individuals’…

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  • National Haemophilia Journal

From the President

  • Gavin Finkelstein -
  • 11 December 2024
As we wrap up 2024, HFA reflects on our achievements in new therapies, hep C advocacy and support during the year.
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  • National Haemophilia Journal

Haemophilia gene therapy snapshot survey

  • Suzanne O'Callaghan -
  • 11 September 2024
HFA's haemophilia gene therapy snapshot survey asked people and parents of children with haemophilia what outcomes they would like from treatment now and in the future.
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  • National Haemophilia Journal

From the President

  • Gavin Finkelstein -
  • 11 September 2024
Heading to the end of the year, we review our progress. Gene and emerging therapies are on the agenda, and Bleeding Disorders Awareness Month is coming up.
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  • National Haemophilia Journal

World Hepatitis Day 2024

  • 11 September 2024
World Hepatitis Day 2024 reminds us It’s time for action - hepatitis C and liver health remain important issues for our community and acting now is vital.
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  • National Haemophilia Journal

Congress – a Foundation perspective

  • Gavin Finkelstein -
  • 26 June 2024
Haemophilia Foundation Australia President Gavin Finkelstein spoke with HFA about his experiences at the WFH 2024 World Congress.
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  • National Haemophilia Journal

Gene therapy webinar

  • 26 June 2024
Dr Michiel Coppens joined us at HFA for an interview about gene therapy, answering questions from the community. Watch the video or read the transcript.
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  • National Haemophilia Journal

New haemophilia therapies

  • Alex Klever and Natalie Karlovic -
  • 11 December 2023

ALEX KLEVER Alex Klever is Clinical Nurse Consultant – Haemophilia at the Queensland Haemophilia Centre, Royal Brisbane & Women’s Hospital…

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  • National Haemophilia Journal

Haemophilia treatment survey

  • Suzanne O'Callaghan -
  • 20 March 2023

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager What information does our community want about new haemophilia…

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