Getting older

Sharing experiences is a great way to connect with other people with bleeding disorders. People going through the same thing as you can be very reassuring.

Sometimes having a bleeding disorder like haemophilia or VWD can leave you feeling a bit alone, particularly if you don’t know anyone else who has the same condition.

Our community members share their experiences:

  • living with a bleeding disorder as they get older
  • what they would like out of life  
  • what they have learned and tips and strategies that have worked for them.
Neill shares his experience growing up with haemophilia in the 1950s and 60s, changing treatments, building a career, travelling, and living a full life
Neil shares his experience of living with severe-presenting haemophilia A, and how he continues to live well as he gets older
Mike was born in the early 1950s. He shares his story of growing up with haemophilia
Jason shares his story of growing up with haemophilia and the very different story he was told as a teenager
My name is Perry. I have von Willebrand disease type 2a. I'm in my 70s, and I didn't get diagnosed until I was in my late 50s. I live with the disease and I would like to talk about that.
Zev, Mike and David have severe haemophilia. They talk about their strategies and attitudes to life that help them be resilient and live well.
Zev and Mike have severe haemophilia and don't let their bleeding disorder stop them from enjoying life. They explain their goals for the future and what they do to stay active and maintain their independence.

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