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Home  >  Bleeding disorders  >  Living with a Bleeding Disorder  >  Personal Stories  >  Living with a very rare disorder

Living with a very rare disorder

  • News & Stories

Acquired haemophilia – Jenny’s story

Jenny shares her story of how she discovered she had the acquired haemophilia and how it was able to be successfully treated with the support of her hospital and Haemophilia Treatment Centre.
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  • News & Stories

Growing up with Glanzmann thrombasthenia 

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.
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  • News & Stories

Living with Glanzmann thrombasthenia 

Allison is in her mid-40s and was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder. 
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  • News & Stories

Living life actively with VWD

Adam is in his late 40s and has Type 3 von Willebrand disease (VWD), which is a severe form. He…

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  • News & Stories

Rare and embracing independence

Belinda spoke with HFA about her journey to tackle life independently with factor X (10) deficiency.
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Haemophilia Foundation Australia

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