Home  >  Bleeding disorders  >  Living with a Bleeding Disorder  >  Personal Stories  >  Growing up with a bleeding disorder

Growing up with a bleeding disorder

What’s it like to grow up with a very rare bleeding disorder? Some of our community members talk about their experiences.
Cassie's personal story of growing up with von Willebrand disease (VWD) and learning to manage her heavy periods.

Tell us a little about your bleeding disorder I have severe Type 3 von Willebrand disease. Essentially my blood doesn’t…

We asked some of our community members with bleeding disorders what they would tell their younger self. They reflected on what was most important to them when they were young and had some thoughtful and encouraging messages from what they have learned as they became adults.

Join the HFA community

Sign up for the latest news, events and our free National Haemophilia magazine

Skip to content