News & Stories Video Living life on his own terms: Neill’s haemophilia journey 28 July 2026 Getting older, Haemophilia, Hepatitis C & HIV, Personal stories haemophilia Neill shares his experience growing up with haemophilia in the 1950s and 60s, changing treatments, building a career, travelling, and living a full life Read more
National Haemophilia Journal Red Cake Day – Jasmin and Lincoln's story Jasmin - 30 June 2026 Events & awareness, Growing up with a bleeding disorder, Haemophilia, Parents & families, Personal stories Bleeding Disorders Awareness Month, haemophilia, Red Cake Day Jasmin shares her story of raising awareness about haemophilia with her son Lincoln, who has haemophilia B. Read more
News & Stories Dom on having Gene Therapy for Haemophilia A 23 June 2026 Gene therapy, Haemophilia, New treatments, Personal stories Gene and emerging therapies Dom shares his experience of receiving gene therapy treatment for haemophilia A Read more
News & Stories Fernando on guitar for World Music Day 21 June 2026 Haemophilia, HFA & Foundation news, Personal stories, Young people World Music Day 11yo Fernando plays Paradise by Coldplay for World Music Day Read more
News & Stories Neil on getting older with a bleeding disorder 4 June 2026 Getting older, Haemophilia, Personal stories Neil shares his experience of living with severe-presenting haemophilia A, and how he continues to live well as he gets older Read more
News & Stories Life with an extra challenge – Cassie and Noah’s story 27 April 2026 Boys, Haemophilia, Parents & families, Personal stories Cassie talks about raising a young family with an extra challenge - her son Noah has haemophilia B Read more
News & Stories Michelle – Her journey to diagnosis 16 April 2026 Haemophilia, Personal stories, Women & girls WHD2026 Michelle first experienced bleeding symptoms, in the form of really flooding periods, at the age of 19. Nineteen years later - she got a diagnosis Read more
News & Stories Video Steve on gene therapy for haemophilia 26 March 2026 Gene therapy, Haemophilia, New treatments, Personal stories Gene and emerging therapies Steve shares his experience having gene therapy for severe haemophilia A – and how it has changed his life Read more
News & Stories Simoni and Javonte – growing up with a rare bleeding disorder 26 February 2026 Growing up with a bleeding disorder, Haemophilia, Personal stories, Von Willebrand disease, Young people interview Simoni and Javonte chat about growing up with VWD type 3 and severe haemophilia Read more
News & Stories Telling daughters: Zev’s story 26 August 2025 Growing up with a bleeding disorder, Haemophilia, Parents & families, Personal stories 'Make it a family conversation'. Zev shares his advice for talking to daughters about haemophilia Read more
