News & Stories Fernando on guitar for World Music Day 21 June 2026 Haemophilia, HFA & Foundation news, Personal stories, Young people World Music Day 11yo Fernando plays Paradise by Coldplay for World Music Day Read more
News & Stories Simoni and Javonte – growing up with a rare bleeding disorder 26 February 2026 Growing up with a bleeding disorder, Haemophilia, Personal stories, Von Willebrand disease, Young people interview Simoni and Javonte chat about growing up with VWD type 3 and severe haemophilia Read more
News & Stories Youth at the Conference 22 December 2025 Conferences and meetings, Connection & Support, Personal stories, Young people Australian Bleeding Disorders Conference, social connection, Youth, youth leadership At the Conference young people with bleeding disorders came together from around Australia to learn, connect and share experiences. Read more
News & Stories Nicola and Will – playing competitive sport with haemophilia 2 December 2025 Personal stories, Sport & exercise, Young people soccer Nicola and her son, Will, share their journey with haemophilia and playing elite level sport Read more
News & Stories WFH youth leadership training 24 June 2025 Boys, Girls, HFA & Foundation news, Leadership & mentoring, Personal stories, Young people World Federation of Hemophilia, Youth, youth leadership Alan talks about WFH Global Youth Leadership Training and how it has inspired him with developing youth activities in Australia. Read more
News & Stories Being rare 19 June 2025 Boys, Girls, Growing up with a bleeding disorder, Personal stories, Rare bleeding disorders, Young people boys, factor X deficiency, girls, haemophilia, VWD, Youth What’s it like to grow up with a very rare bleeding disorder? Some of our community members talk about their experiences. Read more
News & Stories Growing up with VWD 18 December 2024 Girls, Growing up with a bleeding disorder, Personal stories, Von Willebrand disease, Women & girls, Young people girls, heavy menstrual bleeding, VWD, young women Cassie's personal story of growing up with von Willebrand disease (VWD) and learning to manage her heavy periods. Read more
News & Stories Jack’s latest travel adventure 17 October 2024 Boys, Personal stories, Travel, Treatment & care, Young people adventure sport, haemophilia, travel, treatment, Youth Jack shares his travel adventures in Canada and the USA - snowboarding and managing haemophilia on the road with new treatments. Read more
News & Stories Youth taking on the future 27 June 2024 Boys, Camps & workshops, Girls, Leadership & mentoring, Personal stories, Young people youth leadership Ben talks about the Blue Shirts youth leadership program, his experiences and hopes for the program. Read more
News & Stories Catching up with youth 27 June 2024 HFA & Foundation news, Personal stories, Young people catch ups, Youth Declan and Bailey talk about catching up with other young people at a gaming bar and what made it fun. Read more