Youth

Growing up with VWD

18 December 2024

Girls, Growing up with a bleeding disorder, Personal stories, Von Willebrand disease, Women & girls, Young people
girls, heavy menstrual bleeding, VWD, young women

Cassie's personal story of growing up with von Willebrand disease (VWD) and learning to manage her heavy periods.

Jack’s latest travel adventure

17 October 2024

Boys, Personal stories, Travel, Treatment & care, Young people
adventure sport, haemophilia, travel, treatment, Youth

Jack shares his travel adventures in Canada and the USA - snowboarding and managing haemophilia on the road with new treatments.

Youth taking on the future

27 June 2024

Ben talks about the Blue Shirts youth leadership program, his experiences and hopes for the program.

Catching up with youth

27 June 2024

Declan and Bailey talk about catching up with other young people at a gaming bar and what made it fun.

Adam, Alan and Cassie talked to HFA about their experiences at the Melbourne Conference in August 2023. It was a great opportunity for young people with bleeding disorders to catch up with each other and hear the very latest information from the experts.

Youth News – My amazing travel adventure

20 September 2023

Personal stories, Travel, Young people

Jack talked to HFA about travelling overseas and managing his haemophilia for some amazing trips!

Overcoming challenges – Adam’s story

19 July 2023

Adam was diagnosed with severe haemophilia A when he was only one week old, after developing an intracranial bleed at…

Shauna – sharing her life experience living with a bleeding disorder

19 July 2023

Tell us a little about your bleeding disorder I have severe Type 3 von Willebrand disease. Essentially my blood doesn’t…

Alan – telling others

19 July 2023

Alan shares his story about how speaking with others about his bleeding disorder helped ease his transition into higher education …

Tim – haemophilia, exercise and being healthy

19 July 2023

You might not think to put “haemophilia” and “weightlifting” in the same sentence, but for Tim Demos this has been…

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