Items tagged 'school'

Navigating challenges at school

Emma Wells -
11 December 2024

Growing up with a bleeding disorder, Life & work & study, Parents & families
haemophilia, inherited platelet function disorders, rare clotting factor deficiencies, school, VWD

How to deal with problems at school if your child has a bleeding disorder like haemophilia, von Willebrand disease (VWD) or other rare bleeding disorders.

Parenting a teenager with a rare bleeding disorder

Elizabeth -
11 September 2024

Growing up with a bleeding disorder, Inherited platelet function disorders, Parents & families, Personal stories, Rare bleeding disorders
friends, girls, Glanzmann thrombasthenia, parents, school

Elizabeth shares her experiences of parenting her teenage daughter Grace who has Glanzmann thrombasthenia, a rare hereditary platelet function disorder.

From the President

Gavin Finkelstein -
20 March 2023

GAVIN FINKELSTEIN President, Haemophilia Foundation Australia I focused on new therapies, starting school and the national conference in National Haemophilia…

Starting school with a bleeding disorder

Janine Furmedge and Jaime Chase -
12 December 2022

JANINE FURMEDGE AND JAIME CHASE Janine Furmedge is Haemophilia Clinical Nurse Consultant, Henry Ekert Haemophilia Treatment Centre, Royal Children's Hospital,…

Youth News – Growing stronger

Gavin -
14 June 2022

Gavin spoke to HFA about growing up with haemophilia and what he has learned about developing his strength and resilience….

Haemophilia school resources

Amy Finlayson -
12 June 2019

AMY FINLAYSON Amy Finlayson is the Haemophilia Clinical Nurse at the Queensland Children’s Hospital, Brisbane Haemophilia, unlike other well-known conditions…