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Items tagged 'Parents, partners & carers'

  • National Haemophilia Journal

Navigating challenges at school

  • Emma Wells -
  • 11 December 2024
How to deal with problems at school if your child has a bleeding disorder like haemophilia, von Willebrand disease (VWD) or other rare bleeding disorders.
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  • National Haemophilia Journal

Travelling overseas with haemophilia

  • Claire -
  • 11 December 2024
Claire describes international travel with her sons with severe haemophilia: treatments, packing, luggage and planning.
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  • National Haemophilia Journal

Why stay in contact with your HTC?

  • 11 December 2024
How your Haemophilia Treatment Centre can support you over your lifetime and ensure your wellbeing and best outcomes from treatment and care.
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  • National Haemophilia Journal

Can you help with PROBE?

  • 11 December 2024
People without a bleeding disorder are also needed for the PROBE Australia Study to research the impact of haemophilia.
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  • National Haemophilia Journal

New VWD fact sheet

  • 11 December 2024
Find answers to your FAQs about von Willebrand disease (VWD) in our new fact sheet - symptoms, types, inheritance, diagnosis and treatment.
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Guide to living with VWD

A guide to living well with von Willebrand disease (VWD) - from diagnosis to treatment, how it is passed on and special issues for females.
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VWD fact sheet

What is von Willebrand disease (VWD) - often called von Willebrand's? This fact sheet covers what causes it, symptoms, diagnosis and treatment.
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  • National Haemophilia Journal

MyABDR and recording your treatment

  • Suzanne O'Callaghan -
  • 11 September 2024
With new haemophilia treatments, recording on MyABDR has some challenges. HTCs and users share their tips.
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  • National Haemophilia Journal

Parenting a teenager with a rare bleeding disorder

  • Elizabeth -
  • 11 September 2024
Elizabeth shares her experiences of parenting her teenage daughter Grace who has Glanzmann thrombasthenia, a rare hereditary platelet function disorder.
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  • National Haemophilia Journal

Heavy menstrual bleeding in teenagers

  • Jaime Chase -
  • 11 September 2024
When and how to seek help for adolescent girls with bleeding disorders when they have heavy periods.
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Haemophilia Foundation Australia

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