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Items tagged 'Parents, partners & carers'

  • National Haemophilia Journal

Australian Bleeding Disorders Conference

  • 26 March 2025
Haemophilia Foundation Australia is convening the 2025 Australian Bleeding Disorders Conference in Brisbane on 16-18 October 2025.
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  • National Haemophilia Journal

Being rare

  • Adam, Bel and Tayla -
  • 26 March 2025
Adam, Bel and Tayla share their experiences of growing up with a very rare bleeding disorder and what they learned along the way.
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  • National Haemophilia Journal

Can you help with the PROBE study

  • 26 March 2025
HFA is still recruiting people to complete the PROBE Australia Study.
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  • National Haemophilia Journal

Rare Disease Day 2025

  • 26 March 2025
Rare Disease Day was celebrated on 28 February 2025 to raise awareness and generate change for people with rare diseases, including rare bleeding disorders.
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  • National Haemophilia Journal

Understanding your menstrual cycle with a bleeding disorder

  • Laura Bardell -
  • 26 March 2025
Starting conversations about periods before menstruation begins can help to normalise and reduce the stigma and shame girls can feel about menstruating.
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  • National Haemophilia Journal

Women and girls advisory group

  • 26 March 2025
The group advising HFA Council on issues for women and girls affected by bleeding disorders had its first meeting in February 2025.
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  • National Haemophilia Journal

World Haemophilia Day 2025

  • 26 March 2025
World Haemophilia Day 2025 is a worldwide call to action to close the gaps in care for women and girls with bleeding disorders.
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  • National Haemophilia Journal

Haemophilia Treatment Preferences Survey

  • CaPPRe -
  • 26 March 2025

(HaemPref Survey) How do individuals make decisions about treatment? What factors encourage or discourage patients from treatments? What are individuals’…

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  • National Haemophilia Journal

Navigating challenges at school

  • Emma Wells -
  • 11 December 2024
How to deal with problems at school if your child has a bleeding disorder like haemophilia, von Willebrand disease (VWD) or other rare bleeding disorders.
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  • National Haemophilia Journal

Travelling overseas with haemophilia

  • Claire -
  • 11 December 2024
Claire describes international travel with her sons with severe haemophilia: treatments, packing, luggage and planning.
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Haemophilia Foundation Australia

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