Items tagged 'Parents, partners & carers'

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth talks about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.
What mental health support services are available and how do you access them?
The PROBE Australia Study is how HFA is building evidence about the needs of men and women affected by haemophilia in Australia. Here's how you can help.
Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.

To celebrate Bleeding Disorders Awareness Week HFA launched this digital movie to showcase Overcoming Challenges of a Bleeding Disorder. 

This is a transcript of Shauna’s presentation at the 2019 Australian Conference. Hi everyone, thank you all for joining me today….

“Lyn” (not her real name) is mother to several children with von Willebrand disorder. She was interviewed by Suzanne O’Callaghan,…

Fiona is in her early 50s and found out she had von Willebrand disease (VWD) when she was 6 years…

Adam was diagnosed with severe haemophilia A when he was only one week old, after developing an intracranial bleed at…

I keep learning new things in my journey with a bleeding disorder and I’ve come to the opinion that this…

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