Items tagged 'Parents, partners & carers'

MyABDR and recording your treatment

Suzanne O'Callaghan -
11 September 2024

With new haemophilia treatments, recording on MyABDR has some challenges. HTCs and users share their tips.

Parenting a teenager with a rare bleeding disorder

Elizabeth -
11 September 2024

Growing up with a bleeding disorder, Inherited platelet function disorders, Parents & families, Personal stories, Rare bleeding disorders
friends, girls, Glanzmann thrombasthenia, parents, school

Elizabeth shares her experiences of parenting her teenage daughter Grace who has Glanzmann thrombasthenia, a rare hereditary platelet function disorder.

Heavy menstrual bleeding in teenagers

Jaime Chase -
11 September 2024

When and how to seek help for adolescent girls with bleeding disorders when they have heavy periods.

Pain in children with bleeding disorders

Daisy Regan -
26 June 2024

Why are health professionals less likely to ask paediatric patients if they are experiencing pain at clinic reviews, compared to their adult patients?

Growing up with Glanzmann thrombasthenia

Elizabeth -
19 March 2024

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth talks about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.

Mental health and support

Nicoletta Crollini -
19 March 2024

What mental health support services are available and how do you access them?

Why is PROBE important?

19 March 2024

The PROBE Australia Study is how HFA is building evidence about the needs of men and women affected by haemophilia in Australia. Here's how you can help.

Hopes for the future

Claire -
11 December 2023

Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.

Overcoming Challenges

19 July 2023

To celebrate Bleeding Disorders Awareness Week HFA launched this digital movie to showcase Overcoming Challenges of a Bleeding Disorder.

Shauna Adams – managing type 3 VWD

19 July 2023

This is a transcript of Shauna’s presentation at the 2019 Australian Conference. Hi everyone, thank you all for joining me today….

Haemophilia Foundation Australia

Created with Heartburst

Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.

Items tagged 'Parents, partners & carers'

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