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No 207 September 2019

In this issue

  • National Haemophilia Journal

Conference 2019

  • 18 September 2019

The 19th Australian Conference on haemophilia, VWD & rare bleeding disorders will be held at the Novotel Manly in Sydney…

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  • National Haemophilia Journal

Bleeding Disorders Awareness Week

  • 18 September 2019

Bleeding Disorders Awareness Week is an opportunity for individuals and families as well as Haemophilia Foundations and other organisations to…

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  • National Haemophilia Journal

From the President

  • Gavin Finkelstein -
  • 18 September 2019

GAVIN FINKELSTEIN Gavin Finkelstein is President, Haemophilia Foundation Australia 2019 CONFERENCE It gets exciting as we come closer to our…

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  • National Haemophilia Journal

Getting Older Project Update

  • Preetha Jayaram -
  • 18 September 2019

PREETHA JAYARAM Preetha Jayaram is the HFA Getting Older Project Officer   Where to from here?  Special thanks to all…

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  • National Haemophilia Journal

ISTH 2019

  • 18 September 2019

Australia once again became the host for an international forum on bleeding disorders when ISTH 2019, the Congress of the…

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  • National Haemophilia Journal

ISTH – a nursing perspective

  • Andrew Atkins and Natalie Gamble-Williams -
  • 18 September 2019

ISTH this year was themed Research, Discovery, Outcomes, and there were a number of presentations outlining the proposed studies for…

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  • National Haemophilia Journal

Twinning with Myanmar

  • Sam Duffield and Leonie Demos -
  • 18 September 2019

Sam’s experiences were originally published in Factor Matters, the newsletter of HFNSW (www.hfnsw.org.au), vol. 40, Winter 2019 and Leonie’s reflections…

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  • National Haemophilia Journal

Extended half-life product use

  • Sumit Parikh -
  • 18 September 2019

SUMIT PARIKH Dr Sumit Parikh is the AHCDO ABDR Senior Research Fellow In 2018, extended half-life (EHL) recombinant factor VIII…

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  • National Haemophilia Journal

WFH Musculoskeletal Congress

  • Abi Polus, Lee Townsend, Helen Dixon -
  • 18 September 2019

ABI POLUS, LEE TOWNSEND AND HELEN DIXON Abi Polus is Senior Clinical Physiotherapist – Haemophilia, Alfred Health, Melbourne. Lee Townsend…

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  • National Haemophilia Journal

Improve arthritic knee pain with exercise

  • Cameron Cramey -
  • 18 September 2019

CAMERON CRAMEY Cameron Cramey is Senior Musculoskeletal Physiotherapist at the Royal Adelaide Hospital Arthritis or arthropathy are generic terms used…

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  • National Haemophilia Journal

World Hepatitis Day

  • 18 September 2019

World Hepatitis Day is marked globally on 28 July. The World Hepatitis Alliance has committed to eliminating viral hepatitis by…

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  • National Haemophilia Journal

Quality of life and emotional wellbeing of children

  • Emma Prowse -
  • 18 September 2019

EMMA PROWSE Dr Emma Prowse is Clinical Psychologist at the Children’s Cancer and Haematology Service, John Hunter Children’s Hospital, Newcastle,…

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  • National Haemophilia Journal

2019 Go For It Grants

  • 18 September 2019

Everyone experiences obstacles at some time, but you’ll never know what you can overcome and achieve unless you Go for…

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  • National Haemophilia Journal

The Female Factors survey 2019

  • Suzanne O'Callaghan -
  • 18 September 2019

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager In July 2019 HFA undertook an evaluation survey of…

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  • National Haemophilia Journal

Youth News – Playing wheelchair football

  • Joe Chivers -
  • 18 September 2019

Joe playing VWFL competition wheelchair football Photo: Joe Chivers  Joe Chivers tells his story of playing elite competition wheelchair football…

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  • National Haemophilia Journal

Calendar

  • 18 September 2019

19th Australian Conference on haemophilia & rare bleeding disorders Novotel Manly, Sydney 10-12 October 2019   Bleeding Disorders Awareness Week 13-19…

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