No 207 September 2019

Conference 2019

18 September 2019

The 19th Australian Conference on haemophilia, VWD & rare bleeding disorders will be held at the Novotel Manly in Sydney…

Bleeding Disorders Awareness Week

18 September 2019

Bleeding Disorders Awareness Week is an opportunity for individuals and families as well as Haemophilia Foundations and other organisations to…

From the President

Gavin Finkelstein -
18 September 2019

GAVIN FINKELSTEIN Gavin Finkelstein is President, Haemophilia Foundation Australia 2019 CONFERENCE It gets exciting as we come closer to our…

Getting Older Project Update

Preetha Jayaram -
18 September 2019

PREETHA JAYARAM Preetha Jayaram is the HFA Getting Older Project Officer Where to from here? Special thanks to all…

ISTH 2019

18 September 2019

Australia once again became the host for an international forum on bleeding disorders when ISTH 2019, the Congress of the…

ISTH – a nursing perspective

Andrew Atkins and Natalie Gamble-Williams -
18 September 2019

ISTH this year was themed Research, Discovery, Outcomes, and there were a number of presentations outlining the proposed studies for…

Twinning with Myanmar

Sam Duffield and Leonie Demos -
18 September 2019

Sam’s experiences were originally published in Factor Matters, the newsletter of HFNSW (www.hfnsw.org.au), vol. 40, Winter 2019 and Leonie’s reflections…

Extended half-life product use

Sumit Parikh -
18 September 2019

SUMIT PARIKH Dr Sumit Parikh is the AHCDO ABDR Senior Research Fellow In 2018, extended half-life (EHL) recombinant factor VIII…

WFH Musculoskeletal Congress

Abi Polus, Lee Townsend, Helen Dixon -
18 September 2019

ABI POLUS, LEE TOWNSEND AND HELEN DIXON Abi Polus is Senior Clinical Physiotherapist – Haemophilia, Alfred Health, Melbourne. Lee Townsend…

Improve arthritic knee pain with exercise

Cameron Cramey -
18 September 2019

CAMERON CRAMEY Cameron Cramey is Senior Musculoskeletal Physiotherapist at the Royal Adelaide Hospital Arthritis or arthropathy are generic terms used…

World Hepatitis Day

18 September 2019

World Hepatitis Day is marked globally on 28 July. The World Hepatitis Alliance has committed to eliminating viral hepatitis by…

Quality of life and emotional wellbeing of children

Emma Prowse -
18 September 2019

EMMA PROWSE Dr Emma Prowse is Clinical Psychologist at the Children’s Cancer and Haematology Service, John Hunter Children’s Hospital, Newcastle,…

2019 Go For It Grants

18 September 2019

Everyone experiences obstacles at some time, but you’ll never know what you can overcome and achieve unless you Go for…

The Female Factors survey 2019

Suzanne O'Callaghan -
18 September 2019

Research, Women & girls
education, surveys, Women, young women, Youth

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager In July 2019 HFA undertook an evaluation survey of…

Youth News – Playing wheelchair football

Joe Chivers -
18 September 2019

Joe playing VWFL competition wheelchair football Photo: Joe Chivers Joe Chivers tells his story of playing elite competition wheelchair football…

Calendar

18 September 2019

19th Australian Conference on haemophilia & rare bleeding disorders Novotel Manly, Sydney 10-12 October 2019 Bleeding Disorders Awareness Week 13-19…

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