No 207 September 2019

In this issue

The 19th Australian Conference on haemophilia, VWD & rare bleeding disorders will be held at the Novotel Manly in Sydney…

Bleeding Disorders Awareness Week is an opportunity for individuals and families as well as Haemophilia Foundations and other organisations to…

GAVIN FINKELSTEIN Gavin Finkelstein is President, Haemophilia Foundation Australia 2019 CONFERENCE It gets exciting as we come closer to our…

PREETHA JAYARAM Preetha Jayaram is the HFA Getting Older Project Officer   Where to from here?  Special thanks to all…

Australia once again became the host for an international forum on bleeding disorders when ISTH 2019, the Congress of the…

ISTH this year was themed Research, Discovery, Outcomes, and there were a number of presentations outlining the proposed studies for…

Sam’s experiences were originally published in Factor Matters, the newsletter of HFNSW (www.hfnsw.org.au), vol. 40, Winter 2019 and Leonie’s reflections…

SUMIT PARIKH Dr Sumit Parikh is the AHCDO ABDR Senior Research Fellow In 2018, extended half-life (EHL) recombinant factor VIII…

ABI POLUS, LEE TOWNSEND AND HELEN DIXON Abi Polus is Senior Clinical Physiotherapist – Haemophilia, Alfred Health, Melbourne. Lee Townsend…

CAMERON CRAMEY Cameron Cramey is Senior Musculoskeletal Physiotherapist at the Royal Adelaide Hospital Arthritis or arthropathy are generic terms used…

World Hepatitis Day is marked globally on 28 July. The World Hepatitis Alliance has committed to eliminating viral hepatitis by…

EMMA PROWSE Dr Emma Prowse is Clinical Psychologist at the Children’s Cancer and Haematology Service, John Hunter Children’s Hospital, Newcastle,…

Everyone experiences obstacles at some time, but you’ll never know what you can overcome and achieve unless you Go for…

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager In July 2019 HFA undertook an evaluation survey of…

Joe playing VWFL competition wheelchair football Photo: Joe Chivers  Joe Chivers tells his story of playing elite competition wheelchair football…

19th Australian Conference on haemophilia & rare bleeding disorders Novotel Manly, Sydney 10-12 October 2019   Bleeding Disorders Awareness Week 13-19…

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