We are happy to let you know that our generous presenters have allowed us to share their presentation slides in PDF below in the agenda.
Disclaimer:
These presentation slides are provided for reference only and are intended solely for the delegates of the Australian Bleeding Disorders Conference 2025, hosted by Haemophilia Foundation Australia. The content remains the intellectual property of the presenters and may not be copied, reproduced or distributed in any form without prior written permission.
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Thursday 16 October 2025
1200-2100
Youth Activity (offsite) (free of charge)
Meet for lunch at the hotel, then head to Kangaroo Point Cliffs for a climb. Afterwards, we have some great activities planned in between attending the Welcome Reception and Exhibition Opening.
1500-1630
Community Meet & Greet (free of charge)
This is the first opportunity before the conference kicks off to meet up with community members and enjoy casual conversations following afternoon tea.
1830-1930
Welcome Reception and Exhibition Opening (free of charge)
Join delegates at the official opening, meet others, and walk around the exhibition.
Friday 17 October 2025
0700-0830
Men’s Breakfast ($25.00 per person)
Teamwork for a better future
Chair: Jonathan Spencer
What’s current and emerging, teamwork and their ideas about engaging men
Panelists: Adam, David, Alan, Steve Matthews
0700-0830
Women’s Breakfast ($25.00 per person)
Chair: Leonie Demos
Join us for a fun way to start the day and connect with other women
0845-1015
Conference Opening
0845-0855
Welcome from HFA President & Acknowledgement of Country, Gavin Finkelstein
25 years of comprehensive care in Queensland, Dr Simon Brown
0855-0910
0910-1015
Plenary 1
Gene and emerging therapies
Chair: Prof Huyen Tran
Treatment landscape in Australia, Prof Huyen Tran
Patient personal stories: Steve, Domenic
The new treatment landscape of haemophilia: opportunities and challenges, Prof Cedric Hermans
Q&A
1015-1045
Morning Tea
1045-1215
Concurrent Session 1A
The Starting Line – what you need to know for your child (Newly diagnosed)
Chair: Robyn Shoemark
Parent presentations: Tim, Shu
Blood Busters – Busting the myths of bleeding disorder
Dr Julie Curtin
A simple injection…is it ever simple? Janine Furmedge
The hidden cost of progress: Navigating the challenges of emicizumab injections, Dr Elise Flynn
Levelling the playing field, Nicola Hamilton
Bleeding Disorder Lingo, Robyn Shoemark
Q&A panel
Concurrent Session 1B
Youth – my amazing bleed story!
Chair: Jaime Chase
Introduction
Tall stories of bleeds – are they true or fake?
Panel discussion and audience participation
Topics to include:
- Travel
- Tattoos
- Partying, drinking, drugs
- Music festivals, concerts
- Sex
Panelists:
Young man: Javonte
Young woman: Simoni
Parent: Catherine
Social worker: Emma Wells
Physiotherapist: Gerald Yeo
Nurses: Joanna McCosker & Kara Cordiner
Doctor: A/Prof Chris Barnes
Concurrent Session 1C
What now? I’m still here (Getting older)
Chair: Dr Liane Khoo
Introduction & overview on ageing with a bleeding disorder, Dr Liane Khoo
Patient story, Neill
Getting to the heart of the matter – Cardiovascular issues in people with bleeding disorders, Dr Caroline Dix
HIV, hepatitis C and liver health – changing the focus for an ageing population, A/Prof Krispin Hajkowicz
Preparing for future needs, Yu-hsuan (Yoshi) Lin
General panel discussion and Q&A Penny McCarthy, Jane Portnoy
1215-1330
Lunch
1330-1500
Concurrent Session 2A
Von Willebrand Disease
Chair: Dr Sam Hitchins
Introduction, Dr Sam Hitchins
Patient story, Tyler
Diagnosis & bleeding assessment tools, Dr Sam Hitchins
Current & emerging therapies, Dr Stephanie P’ng
Your Voice Matters – Encouraging Self-Advocacy for Individuals with VWD,
Monique Manzanera & Sophie
Panel discussion
Q&A
Concurrent Session 2B
‘Skin, teeth and scopes – oh my!’
(Dental and minor procedures)
Chair: Dr Jane Mason
Introduction, Dr Jane Mason
What do I need to know?
- Managing an endoscopy, Sue Webzell
- Managing dental procedures, Dr Sophie Zheng
Helping children with medical procedures, Janelle Keyser
Q&A
Concurrent Session 2C
Reproduction and family planning
Chair: Dr Julie Curtin
Introduction – how are bleeding disorders inherited, Dr Julie Curtin
What is genetic testing? And how does it work? Kathleen Le Marquand
You’re thinking of getting pregnant. What are your options? And now you are pregnant, what about birth plans and neonatal care? Dr Renee Eslick
Perinatal care of the bleeding disorder patient as a multi-disciplinary team, Lara Nicholson
IVF Patient story, Shannon
Patient story, Rebecca
Q&A
1500-1530
Afternoon tea
1530-1700
Plenary 2
Model of care
Chair: Deon York
Personal perspectives from a parent and people with bleeding disorders: What is an ideal comprehensive care model over the lifespan?
- Claudio
- Ben
- Gavin
Future of comprehensive care in Australia, Dr Simon Brown
Shared decision making, Joanna McCosker
What is the role of the NBA in relation to product funding, Horizon Scanning and MyABDR? Jo Cameron
What is the role of AHCDO? Dr Stephanie P’Ng
What is the role of HFA? Natashia Coco
Q&A
1815
Remembrance Service (free of charge)
1900
Conference Dinner ($85.00 per person)
Tickets must be pre-purchased
Join your fellow delegates for a relaxed and informal evening. Price includes dinner, drinks and entertainment.
Saturday 18 October 2025
0845-1015
Plenary 3
Women and bleeding disorders
Chair: A/Prof Jenny Curnow
Introduction: A/Prof Jenny Curnow
Patient perspectives – stage of life
- Young woman
- Adult woman/mother, Lauren
- Menopause: woman with haemophilia, Sharron
- Menopause: woman with VWD, Kim
Is the female revolution in hemophilia care and treatment underway? Prof Cedric Hermans
Women and bleeding disorders, A/Prof Jenny Curnow
Panel discussion and Q&A, presenters joined by Monique Manzanera
1015-1045
Morning Tea
1045-1215
Concurrent Session 3A
Rare Bleeding Disorders
Chair: Dr Sally Campbell
Introduction on rare bleeding disorders & pipeline novel therapies,
Dr Sally Campbell
Personal story, Ashleigh
Parent story, Ranu
Acquired haemophilia, Dr Sally Campbell
Acquired haemophilia personal story, Jenny
Q&A
Concurrent Session 3B
Examining the Shoulder – Is it a bleed or an injury?
Chair: Cameron Cramey
Personal story
Signs and symptoms of a shoulder bleed, Veronique Beets
Personal story: Keeping strong, Alan
Q&A
Concurrent Session 3C
Don’t worry it’s just mild!
Chair: Dr Chee Wee Tan
Introduction
Personal story, Brian
Adult perspective, Dr Chee Wee Tan
Don’t tell her she can’t play football! A/ProfTina Carter
So… When is it time to worry? (Nursing perspective),
Amy Finalyson & Beryl Zeissink
Q&A
1215-1330
Lunch
1330-1500
Plenary 4
Lifestyle – Teamwork to live your life
Chair: Dr Gianna Pastore
How important it is to connect? Laura Bardell
Let’s talk about piercings, tattoos and even Botox, Steve Matthews
Complementary therapies in bleeding disorders: evidence for use, mechanism of action and relative risk, Cameron Cramey
A potential role for hypnosis in patients with haemophilia, Dr Vidya Limaye
Diets and weight management, and maintaining a healthy weight, Michael Wilson
Navigating the world: travelling with a bleeding disorder and partnering with your HTC, Megan Walsh
Q&A
1500-1530
Afternoon tea
1530-1700
Plenary 5
Novel therapies changing physiotherapy management across the lifespan
Chair: Hayley Coulson
Introduction, Hayley Coulson
Adolescent and Young Adult, Alison Morris
Adulthood & Ageing, Abi Polus
Panel discussion
1650-1700
Conference close
Dr Jane Mason & Dr Simon Brown
Please note the agenda is subject to change. Last updated 8/10/2025.