Items tagged 'self-advocacy'

Women's Stories matter Workshop

23 September 2026

In the HFA Women’s Stories matter Workshop women came together to focus on the art of telling your story effectively to achieve change.

HFA Women bleed too survey

Suzanne O'Callaghan -
30 June 2026

The HFA Women Bleed Too survey explored the experiences of Australian women and girls with bleeding disorders in health care settings.

VWD self-advocacy – your voice matters

Sophie -
16 December 2025

Sophie tells her personal story of advocating for herself while pregnant and managing childbirth with Type 1 von Willebrand disease (VWD).

Women: caregivers to patients to advocates

Lara Nicholson -
26 June 2024

This session discussed the work of women advocates to overcome the general and longstanding misunderstanding that women are only carriers and do not have bleeding disorders.

A psychosocial perspective

Jane Portnoy -
16 December 2019

HIGHLIGHTS JANE PORTNOY Jane Portnoy, Social Worker – Haemophilia The Alfred hospital, Melbourne Youth – what’s the risk?…