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International Women’s Day 2024
Today we celebrate the women in the bleeding disorders community – whether they’re women with bleeding disorders or mums, partners,...
Rare Disease Day 2024
Today is Rare Disease Day – a rare leap year day and very fitting for a worldwide event to raise awareness...
PROBE Australia Study Update
We are building evidence about the needs of men and women affected by haemophilia in Australia....
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Personal stories
Growing up with Glanzmann thrombasthenia
Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your...
Living with Glanzmann thrombasthenia
Allison is in her mid-40s and was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences...