No 211 September 2020

COVID-19 restrictions

14 September 2020

During the COVID-19 restrictions HFA staff are working from home, but most services are continuing as usual. Please note you…

HFA Getting Older Info Hub

14 September 2020

Click here to check out the new Getting Older Info Hub on the HFA website. Your go-to zone to…

From the President

Gavin Finkelstein -
14 September 2020

Advocacy, HFA & Foundation news, International connections, Treatment & care
clinical guidelines, EHLs, Hemlibra, representation, treatment, World Federation of Hemophilia

GAVIN FINKELSTEIN Gavin Finkelstein is President, Haemophilia Foundation Australia NEW WFH HAEMOPHILIA GUIDELINES The new World Federation of Hemophilia (WFH)…

World Hepatitis Day 2020

14 September 2020

We mark World Hepatitis Day globally on 28 July. In 2020 we asked our community to help with the worldwide…

Bleeding Disorders Awareness Week 2020

14 September 2020

Bleeding Disorders Awareness Week is an opportunity for individuals and families as well as Haemophilia Foundations and other organisations to…

WFH Virtual Summit 2020

14 September 2020

In 2020 COVID-19 emerged worldwide and it was no longer safe to hold large face-to-face meetings. The World Federation of…

COVID-19 and the new normal

Jaime Chaise, Nicoletta Crollini -
14 September 2020

Emerging from COVID – defining a new normal Moderator: Declan Noone, President, European Haemophilia Consortium The impact of COVID-19 on…

Quality of life in a changing world

Suzanne O'Callaghan -
14 September 2020

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager What does quality of life mean to you? Living…

What have we learned from PROBE?

Suzanne O'Callaghan -
14 September 2020

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager If you saw the PROBE data about ageing and…

Uptake of MyABDR in Australia

Sumit Parikh -
14 September 2020

SUMIT PARIKH Sumit Parikh is the AHCDO ABDR Senior Research Fellow With COVID-19 gripping the entire world, the ISTH Congress,…

VWD update

Suzanne O'Callaghan -
14 September 2020

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager INTERNATIONAL VWD CLINICAL GUIDELINES The WFH Virtual Summit provided…

Ultrasound joint scanning in haemophilia

Cat Pollard -
14 September 2020

CAT POLLARD Cat Pollard is Advanced Clinician Physiotherapist, Auckland Regional Haemophilia Service This article is reprinted with permission from Bloodline,…

Siblings and haemophilia

Jane Portnoy -
14 September 2020

JANE PORTNOY Jane Portnoy is an Accredited Mental Health Social Worker and Family Therapist at the Ronald Sawers Haemophilia Centre,…

New Factored In

14 September 2020

Factored In is an HFA website that was launched in 2012 for young people to blog and comment. Fast forward…

Youth News – My brothers have haemophilia

Angelina -
14 September 2020

What’s it like to be the sibling of someone with a bleeding disorder? Angelina shares her story of the highs,…

HFA instagram

14 September 2020

You may be familiar with HFA’s Facebook page and Twitter feed, but did you know HFA is also on Instagram?…

Calendar

14 September 2020

Bleeding Disorders Awareness Week 11-17 October 2020 Tel: 03 9885 7800 Fax: 03 9885 1800 Email: hfaust@haemophilia.org.au World Haemophilia Day 17…

In this issue

Join the HFA community