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Items tagged 'Fact sheets & booklets'

Emerging therapies publications

Downloadable education resources on new and emerging therapies in bleeding disorders, such as gene therapy for haemophilia.
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Rebalancing therapies fact sheet

This factsheet explains how rebalancing therapies work in haemophilia and are given, types (TFPIs, siRNAs) and side effects.
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Bispecific antibody therapy fact sheet

This factsheet on bispecific antibody therapies explains factor VIIIa (8a) mimetics like emicizumab, how they work and are given in haemophilia.
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Clotting factor replacement therapy fact sheet

The clotting factor replacement therapy factsheet explains how it works in haemophilia, when and how it is given, side-effects and living well.
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Gene therapy for haemophilia fact sheet

This fact sheet answers how gene therapy for haemophilia works, who can have it, the risks and benefits, the treatment process and other FAQs.
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Guide to living with VWD

A guide to living well with von Willebrand disease (VWD) - from diagnosis to treatment, how it is passed on and special issues for females.
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VWD fact sheet

What is von Willebrand disease (VWD) - often called von Willebrand's? This fact sheet covers what causes it, symptoms, diagnosis and treatment.
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Acquired haemophilia

A fact sheet on acquired haemophilia A, with its cause, symptoms and treatment.
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Prophylaxis colouring book

A colouring and puzzle book on haemophilia prophylaxis for a young child.
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  • Video

On the move with haemophilia

On the Move with Haemophilia is a toolkit and videos about sport and exercise for young people with haemophilia aimed at parents, teachers, and sports coaches. It includes appropriate exercise, managing a bleeding episode and rehabilitation after a bleed.
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