Youth

Youth at the Conference

7 December 2023

Adam, Alan and Cassie talked to HFA about their experiences at the Melbourne Conference in August 2023. It was a great opportunity for young people with bleeding disorders to catch up with each other and hear the very latest information from the experts.

Youth News – My amazing travel adventure

20 September 2023

Personal stories, Travel, Young people

Jack talked to HFA about travelling overseas and managing his haemophilia for some amazing trips!

Overcoming challenges – Adam’s story

19 July 2023

Adam was diagnosed with severe haemophilia A when he was only one week old, after developing an intracranial bleed at…

Shauna – sharing her life experience living with a bleeding disorder

19 July 2023

Tell us a little about your bleeding disorder I have severe Type 3 von Willebrand disease. Essentially my blood doesn’t…

Alan – telling others

19 July 2023

Alan shares his story about how speaking with others about his bleeding disorder helped ease his transition into higher education …

Tim – haemophilia, exercise and being healthy

19 July 2023

You might not think to put “haemophilia” and “weightlifting” in the same sentence, but for Tim Demos this has been…

Youth News: A message to your younger self

29 June 2023

Bleeding disorders, Growing up with a bleeding disorder, Personal stories, Young people

We asked some of our community members with bleeding disorders what they would tell their younger self. They reflected on what was most important to them when they were young and had some thoughtful and encouraging messages from what they have learned as they became adults.

The changing world of new treatments

1 May 2023

What's changed in haemophilia treatments? Listen to the stories of people of all ages in the Australian haemophilia community as they described the differences with the new treatments and how it has affected their lifestyle, independence and quality of life.

Being involved – a great way to meet people

16 January 2023

Willem chats about being part of his local community, making friends and trying out new skills.

Haemophilia – the spice of life

12 December 2022

Willem spoke to us about working, exercising and being out and about in these days with new treatments.

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