Items tagged 'Youth'

WFH youth leadership training

24 June 2025

Alan talks about WFH Global Youth Leadership Training and how it has inspired him with developing youth activities in Australia.

Being rare

19 June 2025

Boys, Girls, Growing up with a bleeding disorder, Personal stories, Rare bleeding disorders, Young people
boys, factor X deficiency, girls, haemophilia, VWD, Youth

What’s it like to grow up with a very rare bleeding disorder? Some of our community members talk about their experiences.

Being rare

Adam, Bel and Tayla -
26 March 2025

Adam, Bel and Tayla share their experiences of growing up with a very rare bleeding disorder and what they learned along the way.

Jack’s latest travel adventure

17 October 2024

Boys, Personal stories, Travel, Treatment & care, Young people
adventure sport, haemophilia, travel, treatment, Youth

Jack shares his travel adventures in Canada and the USA - snowboarding and managing haemophilia on the road with new treatments.

Haemophilia inheritance video

11 September 2024

Boys, Haemophilia, Inheritance
haemophilia, inheritance, males, Youth

HFA's short video for teenage males answers the question, will males with haemophilia pass it on to their children - and how are genes involved?

Career and job pathways

Jane Portnoy -
11 September 2024

How can young people with bleeding disorders find the direction for their career and take the first steps in employment?

Jack’s latest travel adventures

Jack -
11 September 2024

Boys, Haemophilia, New treatments, Personal stories, Travel, Young people
adventure sport, haemophilia, travel, Youth

Jack talks about his travel adventures in Canada and the USA, snowboarding and managing haemophilia on the road with new treatments.

Catching up with youth

27 June 2024

Declan and Bailey talk about catching up with other young people at a gaming bar and what made it fun.

Catching up with youth

Declan and Bailey -
26 June 2024

Declan and Bailey talk about the HFV Youth Day Out event at a gaming bar and what made it fun.

Body art – tattoos and piercings

Jaime Chase -
26 June 2024

At the Nurses’ Workshop at WFH 2024 World Congress, Scott gave a fascinating presentation about the patient experience of body art with severe haemophilia .

Haemophilia Foundation Australia

Created with Heartburst

Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.

Items tagged 'Youth'

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