No 222 June 2023

With the Australian conference coming up, issues about treatment and care are on the agenda. We have a report from the WFH Comprehensive Care Summit and the ABDR Data Managers explain how your ABDR data contributes to best practice treatment. And Australia Lights Up Red to raise awareness on World Haemophilia Day.

In this issue

Bleeding Disorders Awareness Month – October 2023 We have lots planned, including a dedicated Red Week, and events happening across…

GAVIN FINKELSTEIN President, Haemophilia Foundation Australia  As I write my update for National Haemophilia, I can’t help but think about…

The 21st Australian Conference on haemophilia, VWD & rare bleeding disorders will be held face-to-face at the Pullman on the…

Free Mythbusting Animation Workshop at ACMI Perfect for creative kids! Have fun meeting others, help bust myths about bleeding disorders and learn how…

Unsure about genetic testing and factor level testing in haemophilia and how it works in women and girls?   Haemophilia…

Every year on 17 April World Haemophilia Day the bleeding disorders community worldwide comes together to increase awareness of haemophilia,…

ABDR Data Managers Julia, Marina, Linda and Deirdre spoke to HFA about their role with Australian Bleeding Disorders Registry (ABDR)…

In July 2023 Australian landmarks will be glowing green to raise awareness about eliminating viral hepatitis. World Hepatitis Day is…

YU-HSUAN LIN (YOSHI)  Yu-hsuan Lin (Yoshi) is Haemophilia Nurse Consultant, Haemophilia Treatment Network SA, at the Royal Adelaide Hospital, South…

SUZANNE O’CALLAGHAN Suzanne O’Callaghan is HFA Policy Research and Education Manager What are your rights and responsibilities with superannuation and…

If you could go back in time, what would you say to your younger self? Growing up with a bleeding…

World Hepatitis Day 28 July 2023 21st Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders Melbourne 24-26 August 2023…

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