Items tagged 'Research'

One year with the ABDR

Ashley Fletcher -
17 June 2025

It has been a rewarding year supporting research with data collected in the Australian Bleeding Disorders Registry (ABDR).

Can you help with the PROBE study

26 March 2025

HFA is still recruiting people to complete the PROBE Australia Study.

Haemophilia Treatment Preferences Survey

CaPPRe -
26 March 2025

(HaemPref Survey) How do individuals make decisions about treatment? What factors encourage or discourage patients from treatments? What are individuals’…

Can you help with PROBE?

11 December 2024

People without a bleeding disorder are also needed for the PROBE Australia Study to research the impact of haemophilia.

HaemPref (Haemophilia Treatment Preferences) Survey

26 September 2024

If you or your child have haemophilia, please share your view on new treatments in the HaemPref (Haemophilia Treatment Preferences) Survey.

Haemophilia gene therapy snapshot survey

Suzanne O'Callaghan -
11 September 2024

HFA's haemophilia gene therapy snapshot survey asked people and parents of children with haemophilia what outcomes they would like from treatment now and in the future.

AHCDO research

Caitlin Rice -
26 June 2024

Caitlin Rice is undertaking research projects on VWD type 3 and acquired haemophilia A for AHCDO and will use ABDR data for these projects.

New and emerging issues in physiotherapy

Abi Polus -
26 June 2024

With the new treatments I am seeing people with bleeding disorders in the haemophilia clinic and on the hospital ward who are having a different presentation of bleeding to what we had traditionally seen.

Have you done the PROBE survey yet?

26 June 2024

Participate in the PROBE Australia Study today and contribute to HFA's real-world evidence on haemophilia!

Research studies – why participate?

26 June 2024

With new treatments being assessed by government in Australia, you will be invited to participate in a few research studies. Why participate?

Haemophilia Foundation Australia

Created with Heartburst

Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.

Items tagged 'Research'

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