Items tagged 'Women & girls'

HFA Women bleed too survey

Suzanne O'Callaghan -
30 June 2026

The HFA Women Bleed Too survey explored the experiences of Australian women and girls with bleeding disorders in health care settings.

From the President

Alan Dursun -
30 June 2026

Alan Dursun, HFA President, reflects on the WFH World Congress, women and girls with bleeding disorders and other relevant news.

HFA Women’s Workshop

18 May 2026

Advocacy, Events, HFA & Foundation news, Women & girls

HFA is hosting an informative and inspiring two day women's workshop with Dawn Rotellini in July

Michelle – Her journey to diagnosis

16 April 2026

Michelle first experienced bleeding symptoms, in the form of really flooding periods, at the age of 19. Nineteen years later - she got a diagnosis

VWD: Your voice matters – Sophie’s story

7 April 2026

Family Planning and Pregnancy, Personal stories, Von Willebrand disease, Women & girls

Sophie talks about being diagnosed with VWD in her 20s, pregnancy, and advocating for yourself and others

My platelets are like bricks without cement

Carly -
18 March 2026

Carly shares her tips for living well with Glanzmann thrombasthenia, a rare inherited platelet disorder.

Why test for haemophilia in women and girls?

18 March 2026

Testing for haemophilia in women and girls is crucial as many are not yet diagnosed and registered with the national Bleeding Disorders Registry.

Women bleed too survey

5 March 2026

What are the experiences of women and girls with bleeding disorders when they speak up for themselves in health care settings? Survey closing 8 April 2026

International Women’s Day 2026

5 March 2026

8 March is International Women's Day. Help us balance the scales - let's raise awareness about bleeding disorders testing and diagnosis for women and girls

Conference 2025 – Stories, science, and strong connections

Yuhsuan Lin (Yoshi) -
16 December 2025

The 2025 Conference spotlighted women, ageing with haemophilia and communicating before medical procedures.

Items tagged 'Women & girls'

Join the HFA community