Items tagged 'haemophilia'

Being rare

19 June 2025

Boys, Girls, Growing up with a bleeding disorder, Personal stories, Rare bleeding disorders, Young people
boys, factor X deficiency, girls, haemophilia, VWD, Youth

What’s it like to grow up with a very rare bleeding disorder? Some of our community members talk about their experiences.

EAHAD 2025: managing challenges over the lifespan

Yuhsuan Lin -
17 June 2025

EAHAD 2025 explored haemophilia management challenges - psychological issues, women and menopause, and aged care.

Identifying girls and women affected by haemophilia

Lara Nicholson -
17 June 2025

Queensland HTC clinics aim to identify females who are haemophilia carriers and provide testing and treatment.

WFH Summit: new and complex treatment challenges

Alison Morris -
17 June 2025

Musculoskeletal challenges in haemophilia were a major focus of the 2025 WFH CCS Summit, including non-severe haemophilia.

WFH Summit: what can POC-US tell us?

Elise Mosey -
17 June 2025

Clinicians who use point-of-care ultrasound (POC-US) report joint changes after sub-clinical bleeds in haemophilia.

Being rare

Adam, Bel and Tayla -
26 March 2025

Adam, Bel and Tayla share their experiences of growing up with a very rare bleeding disorder and what they learned along the way.

Can you help with the PROBE study

26 March 2025

HFA is still recruiting people to complete the PROBE Australia Study.

Exercise and movement for persistent pain

Cameron Cramey -
26 March 2025

Exercise and movement are an effective way to manage persistent pain for people with bleeding disorders.

Gene and emerging therapies in haemophilia

Ashley Fletcher -
26 March 2025

Exciting advancements in gene therapy and other emerging treatments for haemophilia were presented at the Blood 2024 conference.

Haemophilia Treatment Preferences Survey

CaPPRe -
26 March 2025

(HaemPref Survey) How do individuals make decisions about treatment? What factors encourage or discourage patients from treatments? What are individuals’…

Haemophilia Foundation Australia

Created with Heartburst

Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.

Items tagged 'haemophilia'

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