No 220 December 2022

Bleeding Disorders Awareness Month was an opportunity to share stories about generations living with haemophilia and VWD and to hear about new haemophilia therapies. With the new year just around the corner, we also have tips for parents about starting at a new school.

In this issue

The HFA Council and Staff wish you a happy and safe festive season. Thank you for your support during 2022…

GAVIN FINKELSTEIN President, Haemophilia Foundation Australia   New therapies It is exciting to see more new therapies for bleeding disorders…

For the first time, Bleeding Disorders Awareness was hosted over a month – and what a great month it was.  …

Across the country our community hosted Red Cake Days, information stalls, children with a bleeding disorder did show-and-tell to their…

Bleeding Disorders Awareness Month in pictures Thank you to everyone who participated in Bleeding Disorders Awareness Month.  Australian Haemophilia Nurses’…

COLOURING IN COMPETITION  Thank you to all the children who participated in this year’s What is your superpower? colouring in…

Haemophilia treatment has changed over the years. The story of ‘Poppa’ Erl, grandfather, and grandson Roman, shows just how much….

Fiona is in her early 50s and found out she had von Willebrand disease (VWD) when she was 6 years…

 

It is an exciting time with more new haemophilia treatments likely to become available in Australia, but there have been…

World AIDS Day is marked globally on 1 December. In 2022 the national theme for World AIDS Day is Boldly…

ANDREA JOHANNESSEN Dr Andrea Johannessen is AHCDO Executive Officer GENE THERAPY ROADMAP The Australian Haemophilia Centre Directors' Organisation (AHCDO) has…

JANINE FURMEDGE AND JAIME CHASE  Janine Furmedge is Haemophilia Clinical Nurse Consultant, Henry Ekert Haemophilia Treatment Centre, Royal Children's Hospital,…

Willem spoke to HFA about working, exercising and being out and about in these days with new treatments.  My name’s…

World AIDS Day 1 December 2022 World Haemophilia Day 17 April 2023 21st Australian Conference on Haemophilia, VWD and Rare…

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