Items tagged 'Rare bleeding disorders'

Rare bleeding disorders

Stephen Matthews -
11 December 2023

STEPHEN MATTHEWS Stephen Matthews is Clinical Nurse Consultant Haemophilia at the Royal Prince Alfred Hospital, Sydney, NSW Rare bleeding disordersChair…

Congenital fibrinogen disorders

Radha Ramanan -
12 September 2023

RADHA RAMANAN Dr Radha Ramanan is the current Australian Haemophilia Centre Directors’ Organisation (AHCDO) Research Fellow. Dr Radha Ramanan received…

Living life actively with VWD

19 July 2023

Adam is in his late 40s and has Type 3 von Willebrand disease (VWD), which is a severe form. He…

Rare Disease Day 2023

20 March 2023

Rare Disease Day is celebrated worldwide on 28 February to raise awareness about the experience of people with rare diseases….

AHCDO update – congenital fibrinogen disorders

Andrea Johannessen -
13 September 2022

AHCDO John Lloyd Clinical Excellence Grant ANDREA JOHANNESSEN Dr Andrea Johannessen is AHCDO Executive Officer The Australian Haemophilia Centre Directors'…

From the President

Gavin Finkelstein -
14 March 2022

GAVIN FINKELSTEIN President, Haemophilia Foundation Australia RAISING AWARENESS On 17 April we join the global community in celebrating…

Rare Disease Day 2022

14 March 2022

Rare Disease Day is celebrated worldwide on 28 February to raise awareness about the experiences of people with rare diseases. The…

Rare Disease Day 2021

23 March 2021

Rare Disease Day was celebrated globally on 28 February 2021 to raise awareness about the experiences of people with rare…

Youth News – Rare and embracing independence

Belinda -
23 March 2021

Belinda spoke with HFA about her journey to tackle life independently with factor X (10) deficiency. It’s the goal…

Rare and embracing independence

28 February 2021

Bel talks about her journey to tackle life independently with factor X (10) deficiency.

Items tagged 'Rare bleeding disorders'

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