No 221 March 2023

In this issue we explore what’s possible in bleeding disorders – from the impact of new treatments in haemophilia to exploring life as a teenager with a bleeding disorder or an adult with a rare disease like Type 3 VWD. And we announce the details of our upcoming conference – a forum on the very latest information and issues in bleeding disorders.

In this issue

The 21st Australian Conference on haemophilia, VWD & rare bleeding disorders will be held face to face at the Pullman…

JAIME CHASE Jaime Chase is Haematology Clinical Nurse Specialist, Children’s Cancer & Haematology Service, Haemophilia Treatment Centre, John Hunter Children’s…

World Haemophilia Day 17 April 2023 21st Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders Melbourne 24-26 August 2023…

PAULINE HILL Pauline Hill is HFA Digital Communications Consultant Whether you’re just starting to think about entering the workforce, or…

GAVIN FINKELSTEIN President, Haemophilia Foundation Australia  I focused on new therapies, starting school and the national conference in National Haemophilia…

Willem talked to HFA about being part of his local community, making friends and trying out new skills. My name’s…

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager What information does our community want about new haemophilia…

Do you want to help improve public transport accessibility for people with disability?  The Disability Standards for Accessible Public Transport…

Adam is in his late 40s and has Type 3 von Willebrand disease (VWD), which is a severe form. He…

Rare Disease Day is celebrated worldwide on 28 February to raise awareness about the experience of people with rare diseases….

Stay up-to-date with the latest news, events and information on bleeding disorders from HFA. Subscribe to our e-news  Follow us…

ALISON MORRIS Alison Morris is Senior Musculoskeletal Physiotherapist at the Haemophilia Treatment Centre at Perth Children’s Hospital, WA The 16th…

Every year on 17 April World Haemophilia Day is recognised worldwide to increase awareness of haemophilia, von Willebrand disease and…

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