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No 221 March 2023

In this issue we explore what’s possible in bleeding disorders – from the impact of new treatments in haemophilia to exploring life as a teenager with a bleeding disorder or an adult with a rare disease like Type 3 VWD. And we announce the details of our upcoming conference – a forum on the very latest information and issues in bleeding disorders.

In this issue

  • National Haemophilia Journal

What’s new in bleeding disorders?

  • 20 March 2023

Stay up-to-date with the latest news, events and information on bleeding disorders from HFA. Subscribe to our e-news  Follow us…

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  • National Haemophilia Journal

From the President

  • Gavin Finkelstein -
  • 20 March 2023

GAVIN FINKELSTEIN President, Haemophilia Foundation Australia  I focused on new therapies, starting school and the national conference in National Haemophilia…

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  • National Haemophilia Journal

Haemophilia treatment survey

  • Suzanne O'Callaghan -
  • 20 March 2023

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager What information does our community want about new haemophilia…

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  • National Haemophilia Journal

2023 Conference

  • 20 March 2023

The 21st Australian Conference on haemophilia, VWD & rare bleeding disorders will be held face to face at the Pullman…

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  • National Haemophilia Journal

World Haemophilia Day 2023

  • 20 March 2023

Every year on 17 April World Haemophilia Day is recognised worldwide to increase awareness of haemophilia, von Willebrand disease and…

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  • National Haemophilia Journal

Have your say about public transport

  • 20 March 2023

Do you want to help improve public transport accessibility for people with disability?  The Disability Standards for Accessible Public Transport…

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  • National Haemophilia Journal

Rare Disease Day 2023

  • 20 March 2023

Rare Disease Day is celebrated worldwide on 28 February to raise awareness about the experience of people with rare diseases….

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  • National Haemophilia Journal

Living life actively with VWD

  • 20 March 2023

Adam is in his late 40s and has Type 3 von Willebrand disease (VWD), which is a severe form. He…

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  • National Haemophilia Journal

What’s possible in haemophilia treatment?

  • Alison Morris -
  • 20 March 2023

ALISON MORRIS Alison Morris is Senior Musculoskeletal Physiotherapist at the Haemophilia Treatment Centre at Perth Children’s Hospital, WA The 16th…

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  • National Haemophilia Journal

Choosing or changing your career path

  • Pauline Hill -
  • 20 March 2023

PAULINE HILL Pauline Hill is HFA Digital Communications Consultant Whether you’re just starting to think about entering the workforce, or…

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  • National Haemophilia Journal

Being a teenager with a bleeding disorder

  • Jaime Chase -
  • 20 March 2023

JAIME CHASE Jaime Chase is Haematology Clinical Nurse Specialist, Children’s Cancer & Haematology Service, Haemophilia Treatment Centre, John Hunter Children’s…

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  • National Haemophilia Journal

Haemophilia – the spice of life part 2

  • Willem -
  • 20 March 2023

Willem talked to HFA about being part of his local community, making friends and trying out new skills. My name’s…

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  • National Haemophilia Journal

Calendar

  • 20 March 2023

World Haemophilia Day 17 April 2023 21st Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders Melbourne 24-26 August 2023…

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