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Items tagged 'Personal stories'

  • News & Stories

WFH youth leadership training

Alan talks about WFH Global Youth Leadership Training and how it has inspired him with developing youth activities in Australia.
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  • News & Stories

Being rare

What’s it like to grow up with a very rare bleeding disorder? Some of our community members talk about their experiences.
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  • National Haemophilia Journal

Being rare

  • Adam, Bel and Tayla -
  • 26 March 2025
Adam, Bel and Tayla share their experiences of growing up with a very rare bleeding disorder and what they learned along the way.
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  • News & Stories

Growing up with VWD

Cassie's personal story of growing up with von Willebrand disease (VWD) and learning to manage her heavy periods.
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  • National Haemophilia Journal

Growing up with VWD

  • Cassie -
  • 11 December 2024
Cassie's personal story of growing up with von Willebrand disease (VWD) and learning to manage her heavy periods.
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  • News & Stories

Jack’s latest travel adventure

Jack shares his travel adventures in Canada and the USA - snowboarding and managing haemophilia on the road with new treatments.
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  • National Haemophilia Journal

Parenting a teenager with a rare bleeding disorder

  • Elizabeth -
  • 11 September 2024
Elizabeth shares her experiences of parenting her teenage daughter Grace who has Glanzmann thrombasthenia, a rare hereditary platelet function disorder.
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  • National Haemophilia Journal

Jack’s latest travel adventures

  • Jack -
  • 11 September 2024
Jack talks about his travel adventures in Canada and the USA, snowboarding and managing haemophilia on the road with new treatments.
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  • News & Stories

Youth taking on the future

Ben talks about the Blue Shirts youth leadership program, his experiences and hopes for the program.
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  • News & Stories

Catching up with youth

Declan and Bailey talk about catching up with other young people at a gaming bar and what made it fun.
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Haemophilia Foundation Australia

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