No 206 June 2019

Bleeding Disorders Awareness Week 2019

12 June 2019

Challenging the status quo Bleeding Disorders Awareness Week is an opportunity for individuals and families as well as Haemophilia Foundations…

From the President

Gavin Finkelstein -
12 June 2019

GAVIN FINKELSTEIN Gavin Finkelstein is President, Haemophilia Foundation Australia OUR FINANCIAL RESOURCES AND FUNDRAISING When anyone asks us about how…

Red Classic 2019

12 June 2019

The Red Classic was a fun and free event hosted in Sydney on Sunday 7 April 2019 – it was…

2019 Conference

12 June 2019

The 19th Australian Conference on haemophilia, VWD & rare bleeding disorders will be held at the Novotel Manly, Sydney, 10-12…

Putting VWD on the map

Suzanne O'Callaghan -
12 June 2019

The WFH VWD Global Group meeting 2019 Photo: WFH SUZANNE O'CALLAGHAN Suzanne O'Callaghan is Policy Research and Education Manager, Haemophilia…

PROBE for real-world evidence

12 June 2019

The real-world PROBE study is now available! WHY IS THE PROBE STUDY IMPORTANT? What is the impact of haemophilia and…

World Haemophilia Day

12 June 2019

Thank you to all who supported World Haemophilia Day! Every year on 17 April World Haemophilia Day is recognised worldwide…

Exploring pain

Kathryn Body -
12 June 2019

KATHRYN BODY Kathryn Body is the Haemophilia and Bleeding Disorders Counsellor, Haemophilia Foundation ACT Managing chronic pain is complex and…

Joint surgery

Abi Polus -
12 June 2019

This article was originally published in The Missing Factor, December 2018, newsletter of Haemophilia Foundation Victoria (www.hfv.org.au), and is adapted with…

Future proofing

Preetha Jayaram -
12 June 2019

An important aspect of the health and wellbeing of bleeding disorders community members? PREETHA JAYARAM Preetha Jayaram is the Haemophilia…

What do we know about carriers?

Joanna McCosker -
12 June 2019

Treatment & care, Women & girls
diagnosis, girls, haemophilia, inheritance, treatment, Women

JOANNA MCCOSKER Joanna McCosker is the Nurse Practitioner at the Queensland Haemophilia Centre, Queensland Children’s Hospital, Brisbane In haemophilia care…

Haemophilia school resources

Amy Finlayson -
12 June 2019

AMY FINLAYSON Amy Finlayson is the Haemophilia Clinical Nurse at the Queensland Children’s Hospital, Brisbane Haemophilia, unlike other well-known conditions…

Youth News – Rock climbing challenge

12 June 2019

Andrew climbing at Wye Creek in New Zealand Photo: Andrew and Scott Godwin Australian brothers Andrew, 30 and Scott, 37,…

South Australia update

12 June 2019

Thank you to Christine for arranging a great get-together for South Australians affected by bleeding disorders in the gardens at…

Calendar

12 June 2019

19th Australian Conference on haemophilia & rare bleeding disorders Novotel Manly, Sydney 10-12 October 2019 Bleeding Disorders Awareness Week 13-19…

In this issue

Join the HFA community