No 216 December 2021

Have you changed your address?

13 December 2021

Make sure you stay connected! If you have changed your contact details, like your postal or email address, let…

From the President

Gavin Finkelstein -
13 December 2021

GAVIN FINKELSTEIN Gavin Finkelstein is President, Haemophilia Foundation Australia We know that when our national conference is over, we can expect…

World AIDS Day 2021

13 December 2021

World AIDS Day is marked globally on 1 December. The Australian national theme for World AIDS Day in 2021…

AHCDO update

Megan Sarson -
13 December 2021

MEGAN SARSON Megan Sarson is Executive Officer at the Australia Haemophilia Centre Directors’ Organisation (AHCDO) The Australia Haemophilia Centre Directors’…

Bleeding Disorders Awareness Week 2021

13 December 2021

During the week of 10-16 October 2021 we celebrated Bleeding Disorders Awareness Week. The week is an opportunity for the…

2021 Conference

13 December 2021

The 20th Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders was held 8-9 October 2021. The event was a…

Conference reflections

13 December 2021

A FOUNDATION PERSPECTIVE Haemophilia Foundation Australia President Gavin Finkelstein spoke with HFA about the Conference and its impact from…

The changing treatment experience

Sue Webzell -
13 December 2021

SUE WEBZELL Sue Webzell is the Haemophilia Clinical Nurse Specialist at Hollywood Private Hospital, Perth, WA Plenary 1 – The…

Where to from here? Achieving the vision

Sharon Caris -
13 December 2021

SHARON CARIS Sharon Caris is Executive Director, Haemophilia Foundation Australia This is a transcript of the presentation by Sharon Caris…

Exercise and resistance training

Johanna Newsom -
13 December 2021

JOHANNA NEWSOM Johanna Newsom is the haemophilia physiotherapist at The Children’s Hospital at Westmead, Sydney NSW Getting stronger safely …

Getting older

Suzanne O'Callaghan -
13 December 2021

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager Getting older Chair ~ Jenny Lees Personal story…

Pain and haemophilia

Nicola Hamilton -
13 December 2021

NICOLA HAMILTON Nicola Hamilton is the haemophilia physiotherapist at the Royal Children’s Hospital, Melbourne Plenary 3 – Pain Chair…

Sex and intimacy

Jaime Chase -
13 December 2021

JAIME CHASE Jaime Chase is the Haematology Clinical Nurse Specialist at the Children’s Cancer & Haematology Service, John Hunter Children’s…

Virtual health

Suzanne O'Callaghan -
13 December 2021

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager Making the most of your health virtually Chair:…

Living with von Willebrand disease

Perry -
13 December 2021

Perry’s story Perry spoke about his personal story of living with von Willebrand disease (VWD) at the 20th Australian…

Growing up with von Willebrand disease

Simoni -
13 December 2021

Simoni’s story This is a transcript of Simoni’s presentation at the 20th Australian Conference on Haemophilia, VWD and Rare…

Von Willebrand disease

Suzanne O'Callaghan -
13 December 2021

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager Von Willebrand disease Chair ~ Susie Couper VWD…

Women and girls

Jaime Chase -
13 December 2021

JAIME CHASE Jaime Chase is the Haematology Clinical Nurse Specialist at the Children’s Cancer & Haematology Service, John Hunter Children’s…

Youth – challenges, taboos and myths

Jane Portnoy -
13 December 2021

JANE PORTNOY Jane Portnoy is Social Worker – Haemophilia at the Ronald Sawers Haemophilia Centre, The Alfred hospital, Melbourne Youth…

Youth News – Dale’s story

Dale -
13 December 2021

Don’t let your bleeding disorder stop you My name’s Dale and I have severe haemophilia A. My approach to my…

Calendar

World Haemophilia Day 17 April 2022 WFH 2022 World Congress 8-11 May 2022

Season’s Greetings

The HFA Council and Staff wish you a happy and safe festive season. Thank you for your support during 2021…

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