No 216 December 2021

In a special feature issue we hear about the highlights, sessions and personal stories at the 2021 Australian Conference, along with some great photos from Bleeding Disorders Awareness Week

In this issue

The 20th Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders was held 8-9 October 2021. The event was a…

MEGAN SARSON Megan Sarson is Executive Officer at the Australia Haemophilia Centre Directors’ Organisation (AHCDO) The Australia Haemophilia Centre Directors’…

During the week of 10-16 October 2021 we celebrated Bleeding Disorders Awareness Week. The week is an opportunity for the…

World Haemophilia Day 17 April 2022 WFH 2022 World Congress 8-11 May 2022  

A FOUNDATION PERSPECTIVE   Haemophilia Foundation Australia President Gavin Finkelstein spoke with HFA about the Conference and its impact from…

JOHANNA NEWSOM Johanna Newsom is the haemophilia physiotherapist at The Children’s Hospital at Westmead, Sydney NSW Getting stronger safely  …

GAVIN FINKELSTEIN Gavin Finkelstein is President, Haemophilia Foundation Australia We know that when our national conference is over, we can expect…

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager Getting older   Chair ~ Jenny Lees Personal story…

Simoni’s story   This is a transcript of Simoni’s presentation at the 20th Australian Conference on Haemophilia, VWD and Rare…

Make sure you stay connected!   If you have changed your contact details, like your postal or email address, let…

Perry’s story   Perry spoke about his personal story of living with von Willebrand disease (VWD) at the 20th Australian…

NICOLA HAMILTON Nicola Hamilton is the haemophilia physiotherapist at the Royal Children’s Hospital, Melbourne Plenary 3 – Pain   Chair…

The HFA Council and Staff wish you a happy and safe festive season. Thank you for your support during 2021…

JAIME CHASE Jaime Chase is the Haematology Clinical Nurse Specialist at the Children’s Cancer & Haematology Service, John Hunter Children’s…

SUE WEBZELL Sue Webzell is the Haemophilia Clinical Nurse Specialist at Hollywood Private Hospital, Perth, WA Plenary 1 – The…

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager Making the most of your health virtually   Chair:…

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager Von Willebrand disease   Chair ~ Susie Couper VWD…

SHARON CARIS Sharon Caris is Executive Director, Haemophilia Foundation Australia This is a transcript of the presentation by Sharon Caris…

JAIME CHASE Jaime Chase is the Haematology Clinical Nurse Specialist at the Children’s Cancer & Haematology Service, John Hunter Children’s…

World AIDS Day is marked globally on 1 December.   The Australian national theme for World AIDS Day in 2021…

JANE PORTNOY Jane Portnoy is Social Worker – Haemophilia at the Ronald Sawers Haemophilia Centre, The Alfred hospital, Melbourne Youth…

Don’t let your bleeding disorder stop you My name’s Dale and I have severe haemophilia A. My approach to my…

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