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No 216 December 2021

In a special feature issue we hear about the highlights, sessions and personal stories at the 2021 Australian Conference, along with some great photos from Bleeding Disorders Awareness Week

In this issue

  • National Haemophilia Journal

Have you changed your address?

  • 13 December 2021

Make sure you stay connected!   If you have changed your contact details, like your postal or email address, let…

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  • National Haemophilia Journal

From the President

  • Gavin Finkelstein -
  • 13 December 2021

GAVIN FINKELSTEIN Gavin Finkelstein is President, Haemophilia Foundation Australia We know that when our national conference is over, we can expect…

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  • National Haemophilia Journal

World AIDS Day 2021

  • 13 December 2021

World AIDS Day is marked globally on 1 December.   The Australian national theme for World AIDS Day in 2021…

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  • National Haemophilia Journal

AHCDO update

  • Megan Sarson -
  • 13 December 2021

MEGAN SARSON Megan Sarson is Executive Officer at the Australia Haemophilia Centre Directors’ Organisation (AHCDO) The Australia Haemophilia Centre Directors’…

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  • National Haemophilia Journal

Bleeding Disorders Awareness Week 2021

  • 13 December 2021

During the week of 10-16 October 2021 we celebrated Bleeding Disorders Awareness Week. The week is an opportunity for the…

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  • National Haemophilia Journal

2021 Conference

  • 13 December 2021

The 20th Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders was held 8-9 October 2021. The event was a…

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  • National Haemophilia Journal

Conference reflections

  • 13 December 2021

A FOUNDATION PERSPECTIVE   Haemophilia Foundation Australia President Gavin Finkelstein spoke with HFA about the Conference and its impact from…

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  • National Haemophilia Journal

The changing treatment experience

  • Sue Webzell -
  • 13 December 2021

SUE WEBZELL Sue Webzell is the Haemophilia Clinical Nurse Specialist at Hollywood Private Hospital, Perth, WA Plenary 1 – The…

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  • National Haemophilia Journal

Where to from here? Achieving the vision

  • Sharon Caris -
  • 13 December 2021

SHARON CARIS Sharon Caris is Executive Director, Haemophilia Foundation Australia This is a transcript of the presentation by Sharon Caris…

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  • National Haemophilia Journal

Exercise and resistance training

  • Johanna Newsom -
  • 13 December 2021

JOHANNA NEWSOM Johanna Newsom is the haemophilia physiotherapist at The Children’s Hospital at Westmead, Sydney NSW Getting stronger safely  …

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  • National Haemophilia Journal

Getting older

  • Suzanne O'Callaghan -
  • 13 December 2021

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager Getting older   Chair ~ Jenny Lees Personal story…

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  • National Haemophilia Journal

Pain and haemophilia

  • Nicola Hamilton -
  • 13 December 2021

NICOLA HAMILTON Nicola Hamilton is the haemophilia physiotherapist at the Royal Children’s Hospital, Melbourne Plenary 3 – Pain   Chair…

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  • National Haemophilia Journal

Sex and intimacy

  • Jaime Chase -
  • 13 December 2021

JAIME CHASE Jaime Chase is the Haematology Clinical Nurse Specialist at the Children’s Cancer & Haematology Service, John Hunter Children’s…

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  • National Haemophilia Journal

Virtual health

  • Suzanne O'Callaghan -
  • 13 December 2021

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager Making the most of your health virtually   Chair:…

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  • National Haemophilia Journal

Living with von Willebrand disease

  • Perry -
  • 13 December 2021

Perry’s story   Perry spoke about his personal story of living with von Willebrand disease (VWD) at the 20th Australian…

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  • National Haemophilia Journal

Growing up with von Willebrand disease

  • Simoni -
  • 13 December 2021

Simoni’s story   This is a transcript of Simoni’s presentation at the 20th Australian Conference on Haemophilia, VWD and Rare…

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  • National Haemophilia Journal

Von Willebrand disease

  • Suzanne O'Callaghan -
  • 13 December 2021

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager Von Willebrand disease   Chair ~ Susie Couper VWD…

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  • National Haemophilia Journal

Women and girls

  • Jaime Chase -
  • 13 December 2021

JAIME CHASE Jaime Chase is the Haematology Clinical Nurse Specialist at the Children’s Cancer & Haematology Service, John Hunter Children’s…

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  • National Haemophilia Journal

Youth – challenges, taboos and myths

  • Jane Portnoy -
  • 13 December 2021

JANE PORTNOY Jane Portnoy is Social Worker – Haemophilia at the Ronald Sawers Haemophilia Centre, The Alfred hospital, Melbourne Youth…

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  • National Haemophilia Journal

Youth News – Dale’s story

  • Dale -
  • 13 December 2021

Don’t let your bleeding disorder stop you My name’s Dale and I have severe haemophilia A. My approach to my…

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  • National Haemophilia Journal

Calendar

World Haemophilia Day 17 April 2022 WFH 2022 World Congress 8-11 May 2022  

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  • National Haemophilia Journal

Season’s Greetings

The HFA Council and Staff wish you a happy and safe festive season. Thank you for your support during 2021…

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