No 208 December 2019

PROBE study

16 December 2019

It's not too late to complete the PROBE (Patient Reported Outcomes Burdens and Experiences) questionnaire! The survey is available at https://tinyurl.com/PROBE-Australia….

From the President

Gavin Finkelstein -
16 December 2019

GAVIN FINKELSTEIN Gavin Finkelstein is President, Haemophilia Foundation Australia 2019 CONFERENCE It is hard to believe the Conference is…

HFA – 40 years!

16 December 2019

This year is the 40th year of Haemophilia Foundation Australia (HFA). Over the years we have represented and supported the…

World AIDS Day 2019

16 December 2019

World AIDS Day is marked globally on 1 December to raise awareness in the wider community about the issues surrounding…

New gene therapy resource

16 December 2019

HFA’s new resource Gene therapy for haemophilia was developed to answer the questions from our community: What types of gene…

Bleeding Disorders Awareness Week

16 December 2019

Bleeding Disorders Awareness Week and Red Cake Day was held this year from 13-19 October 2019. Haemophilia Foundation Australia and…

Bleeding Disorders Awareness Week 2019

16 December 2019

Bleeding Disorders Awareness Week Around Australia Hamlyn Banks Primary School Today Hamlyn Banks Primary dressed in red. We are raising…

Colouring-In Competition

16 December 2019

COLOURING-IN COMPETITION 2019 Congratulations to all the winners and thank you to everyone who participated. Category 1: children aged under…

Getting Older Project update

Preetha Jayaram -
16 December 2019

PREETHA JAYARAM Preetha Jayaram is the HFA Getting Older Project Officer LET’S TALK ABOUT GETTING OLDER My thanks to…

2019 Conference

16 December 2019

The 19th Australian Conference on haemophilia, VWD & rare bleeding disorders in October 2019 seemed to be enjoyed by all…

DCMEF funding round

16 December 2019

Damon Courtenay Memorial Endowment Fund Funding Round Open The Damon Courtenay Memorial Endowment Fund (DCMEF) was established by Haemophilia Foundation…

Mission accomplished!

Andrew and Scott -
16 December 2019

Andrew and Scott are Australian community members with severe haemophilia A. Australian brothers Andrew, 30 and Scott, 37, took on…

Youth News – What’s the risk?

16 December 2019

How would you decide the risk involved with different scenarios? The Youth session at the Conference was a lively debate…

Calendar

16 December 2019

World Haemophilia Day 17 April 2020 WFH World Congress Kuala Lumpur, Malaysia 14-17 June 2020 Bleeding Disorders Awareness Week…

Season’s Greetings

16 December 2019

The HFA Council and Staff wish you a happy and safe festive season. Thank you for your support during 2019…

Reflections on the Conference

16 December 2019

WHAT DID THE DELEGATES SAY? ‘My second conference after Melbourne and the quality has been outstanding, probably the best one…

2019 Conference – a foundation perspective

Gavin Finkelstein -
16 December 2019

The 2019 Conference: a foundation perspective Gavin Finkelstein spoke with Suzanne O'Callaghan from HFA about his experiences at the Conference…

A physiotherapy perspective

Joshua Hutton and Joshua Wakefield -
16 December 2019

JOSHUA HUTTON AND JOSHUA WAKEFIELD Joshua Hutton and Joshua Wakefield are Physiotherapists, Royal Prince Alfred Hospital, Sydney, NSW Photo: Australian and…

A psychosocial perspective

Jane Portnoy -
16 December 2019

HIGHLIGHTS JANE PORTNOY Jane Portnoy, Social Worker – Haemophilia The Alfred hospital, Melbourne Youth – what’s the risk?…

A nursing perspective

Susan Dalkie -
16 December 2019

SUSAN DALKIE Susan Dalkie is the Bleeding Disorders Nurse – NT, Royal Darwin Hospital The line-up of sessions provided at…

Managing my VWD

Shauna -
16 December 2019

Managing my VWD – Shauna’s story SHAUNA Shauna is an Australian community member with von Willebrand disease This is a…

In this issue

Join the HFA community